Recent content by myohmymary

Hi, i may sound way off, but are eye problems a part of cf? My daughter Allissa is 7 with ddf508. She has had every problem (less pulmonary) that they say "isn't likely". I really like to be hyper aware of anything that could possibly arise, I think it gives me a better chance at staving it off...

Hi, i may sound way off, but are eye problems a part of cf? My daughter Allissa is 7 with ddf508. She has had every problem (less pulmonary) that they say "isn't likely". I really like to be hyper aware of anything that could possibly arise, I think it gives me a better chance at staving it off...

Allissa had the surgery this morning. We went with the Mickey and I think eventually we will be glad for it. She is in a lot more pain than I anticipated, but they are keeping her medicated. I am glad for this because it is allowing her to recover and me to adjust. Mentally I knew what was...

Allissa had the surgery this morning. We went with the Mickey and I think eventually we will be glad for it. She is in a lot more pain than I anticipated, but they are keeping her medicated. I am glad for this because it is allowing her to recover and me to adjust. Mentally I knew what was...

My daughter Allissa is 7 ddf508, her fev1 is currently 124% as inpatient. She has severe chronic sinusitis, liver problems, and a host of gi issues.

My daughter Allissa is 7 ddf508, her fev1 is currently 124% as inpatient. She has severe chronic sinusitis, liver problems, and a host of gi issues.

Chuck, How is that possible?

Chuck, How is that possible?

My daughter is 7 w/CF, I just removed my little social butterfly from 2nd grade because the public school wasn't delivering meds right and refused to change procedure. I am homeschooling now, but amconsidering a college prep charter school. If I go this route, what should be in a CFer's 504...

My daughter is 7 w/CF, I just removed my little social butterfly from 2nd grade because the public school wasn't delivering meds right and refused to change procedure. I am homeschooling now, but amconsidering a college prep charter school. If I go this route, what should be in a CFer's 504...

I tell my 7 yr old, God made you this way because he knew you were strong enough, it's up to you to be who he already knows you are... In the Bible he tells us, I knew you before you were formed. He knew how strong you are, he knew what you had to face, the pain, the lonliness, the CF... He...

I tell my 7 yr old, God made you this way because he knew you were strong enough, it's up to you to be who he already knows you are... In the Bible he tells us, I knew you before you were formed. He knew how strong you are, he knew what you had to face, the pain, the lonliness, the CF... He...

My daughter allissa is getting her g-tube on friday. a nurse came in and went over things with us, I am a bit overwhelmed. They showed us the button, the mic-key and the one step. Does anyone have any advice, pointers or recommendations as to which works best? Allissa is only 7 and I need...

My daughter allissa is getting her g-tube on friday. a nurse came in and went over things with us, I am a bit overwhelmed. They showed us the button, the mic-key and the one step. Does anyone have any advice, pointers or recommendations as to which works best? Allissa is only 7 and I need...

I have gone so far to remove my infant daughter from the hospital bed in the PICU, and leave the hospital. We have changed care centers 3 times and we have finally found one that meets our proactive forward thinking approach to her CF. Not only are we happier, but so is she... and healthier too...