Recent content by nanny

I am a grandmother with CF who has two adult grandchildren with CF. All your comments have been meaningful both as I watch my daughter and her husband struggle with finding the right balance and as I interact with the grandchildren myself. They are in college and are remarkably responsible...

My ENT also suggested adding a bit of baby shampoo to my sinus rinse once a day. I do it in the morning and it seems to get out some of the big chunks. Having been told about 18 years ago by an MRI tech that I have "the worst sinuses" he's ever seen, I sympathize greatly. I've only had two...

I too ended up in the ER with Levaquin, but was able to take Cipro without problem for several years. A few months ago I had to stop Cipro because of a rash reaction, but it took lots of doses before any problem. I was warned by my pharmacist that they are in the same family, but my reaction...

I agree that you should try for a genetic test if possible. Do you have a CF clinic in your area? Check out the CF Foundation Web site for locations. I don't know where AttyMom lives, but I was not diagnosed for certain until a week before my 73rd birthday - by a genetic test and only after...

I was diagnosed with cf at 72, but had had symptoms most of my life. When I would mention it to doctors, they thought I was crazy, but when a grandchild was diagnosed I finally had the genetic test and there it was: Deltaf508 and a rare mutation, Q1291H. Getting on the right meds and breathing...

I will celebrate my 75th birthday in July. My diagnosis came only two years ago, although I have had the symptoms all my life. Doing well, glad to be alive. I am dedicated to educating folks, especially doctors, about the symptoms, so that thousands of adults of all ages can be diagnosed and...

I am a patient at the Baylor Adult CF Clinic in Houston. I agree with the comments about how good they are. Welcome to Houston. This is my first post. I was diagnosed the week before my 73rd birthday after a lifetime of sinus misery and coughing and two sinus surgeries. The treatments and...