Cystic Fibrosis Forum (EXP)

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Recent content by NatalieB

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    Off Label Kalydeco Question

    Tcfuller, forgot to say... thats amazing that your daughter improved so much, thats tremendous and I wish you the best of luck getting approved again! Keep me posted! One question though, why do you have to get it approved again? did they give you a temporary approval to prove it works and then...
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    Off Label Kalydeco Question

    Jenny, glad I could help!! :) Well I am still fighting the insurance company and now they passed my case onto another Medical Director. Tcfuller, thanks for your response, I feel like you have to get passed a pharmacist, not the medical director to get this approved and your experience makes me...
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    Kalydeco non G551D users

    I think I posted this on the wrong forum earlier. Hi I just joined this because I saw marcjo had a the same issue as me. I have been on Kalydeco for 8 months and the company I work for changed insurance companies (from Oxford to Cigna) and Cigna will not approve the Kalydeco for me because I...
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    Off Label Kalydeco Question

    Hi I just joined this because I saw marcjo had a the same issue as me. I have been on Kalydeco for 8 months and the company I work for changed insurance companies (from Oxford to Cigna) and Cigna will not approve the Kalydeco for me because I don't have G551D. My doctor and I put an appeal in...
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