Cystic Fibrosis Forum (EXP)

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Recent content by NAVCHAPDOC

  1. N

    2 year old In the hospital again with pancreatitis

    Thanks for all the support and info. Today is day 3 in the hospial.so far all of her labs have come back fine except amylase and lipase which are falling by almost 50% per day. This new doc did send a CFTR, PRSS1,SPINK1 and food allergy panel off as well as a urine organic acid test. I realy...
  2. N

    2 year old In the hospital again with pancreatitis

    Thanks for all the support and info. Today is day 3 in the hospial.so far all of her labs have come back fine except amylase and lipase which are falling by almost 50% per day. This new doc did send a CFTR, PRSS1,SPINK1 and food allergy panel off as well as a urine organic acid test. I realy...
  3. N

    2 year old In the hospital again with pancreatitis

    Thanks for all the support and info. Today is day 3 in the hospial.so far all of her labs have come back fine except amylase and lipase which are falling by almost 50% per day. This new doc did send a CFTR, PRSS1,SPINK1 and food allergy panel off as well as a urine organic acid test. I realy...
  4. N

    2 year old In the hospital again with pancreatitis

    This makes my 2 year old daughters 2nd stay in the hospital with pancreatitis. This is the 3 episode that we know of in the last 3 months. Dr's are scratching their heads and running every test I could name off. Her Lipase was 16,400 (yes, thats right 16,400)and Amylase was 2300. Three sweat...
  5. N

    2 year old In the hospital again with pancreatitis

    This makes my 2 year old daughters 2nd stay in the hospital with pancreatitis. This is the 3 episode that we know of in the last 3 months. Dr's are scratching their heads and running every test I could name off. Her Lipase was 16,400 (yes, thats right 16,400)and Amylase was 2300. Three sweat...
  6. N

    2 year old In the hospital again with pancreatitis

    This makes my 2 year old daughters 2nd stay in the hospital with pancreatitis. This is the 3 episode that we know of in the last 3 months. Dr's are scratching their heads and running every test I could name off. Her Lipase was 16,400 (yes, thats right 16,400)and Amylase was 2300. Three sweat...
  7. N

    Welcome Ambry Genetics

    Steven,(also sent this in OM to you Steven, sorry for the repost) thank you in advance. I have recently joined this site and found a lot of helpful info. When I found you in here I think I may have hit gold. Long, long story short is, my 2 year old daughter has had 2 cases of pancreatitis in the...
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    Genetic panel update

    I have been posting questions and information on this board recently about my 2 year old daughter Molly. She has had 2 episodes of pancreatitis in the last 3 months. Everyone including her Dr's are scratching their heads as to why. They sent a genetic panel out because they could not get her to...
  9. N

    Genetic panel update

    I have been posting questions and information on this board recently about my 2 year old daughter Molly. She has had 2 episodes of pancreatitis in the last 3 months. Everyone including her Dr's are scratching their heads as to why. They sent a genetic panel out because they could not get her to...
  10. N

    Genetic panel update

    I have been posting questions and information on this board recently about my 2 year old daughter Molly. She has had 2 episodes of pancreatitis in the last 3 months. Everyone including her Dr's are scratching their heads as to why. They sent a genetic panel out because they could not get her to...
  11. N

    NEED POOP PICTURES PLEASE!

    @HMW, The sweat tests were done @ All Childrens hospital in St Pete, Fl. They are top ranked in the nation if not the world. They just could not get her to sweat. As for the DNA panel, all I know is that it was drawn by Quest. I am not sure how far they take the testing?? My daughter is doing...
  12. N

    NEED POOP PICTURES PLEASE!

    @HMW, The sweat tests were done @ All Childrens hospital in St Pete, Fl. They are top ranked in the nation if not the world. They just could not get her to sweat. As for the DNA panel, all I know is that it was drawn by Quest. I am not sure how far they take the testing?? My daughter is doing...
  13. N

    NEED POOP PICTURES PLEASE!

    @HMW, <br /> <br />The sweat tests were done @ All Childrens hospital in St Pete, Fl. They are top ranked in the nation if not the world. They just could not get her to sweat. As for the DNA panel, all I know is that it was drawn by Quest. I am not sure how far they take the testing?? My...
  14. N

    NEED POOP PICTURES PLEASE!

    @ANGELM231, " It took us a whole YEAR before his blood work came back negative for Celiac's" I am a bit confused. Matt does or does not have Celiac? Thanks for the reply by the way. The DNA pannel has yet to come back for the CF . It sould be another week or two. I am just one of those...
  15. N

    NEED POOP PICTURES PLEASE!

    @ANGELM231, " It took us a whole YEAR before his blood work came back negative for Celiac's" I am a bit confused. Matt does or does not have Celiac? Thanks for the reply by the way. The DNA pannel has yet to come back for the CF . It sould be another week or two. I am just one of those...
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