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Well. I hope it is what we hope it is. Thanks for sharing your Orkambi experience. I just was rather disappointed by the hype/reality of Orkambi and I thought that these future Vertex medications were just expansion into new mutations, but no progress on the actual symptoms experienced..
Ok. So are we talking about a situation where CF symptoms are being reduced to practically nill? Because I've been on Orkambi for a few years now. However, when I've had long gaps (month or so) in my availability of the drug (insurance,etc), I haven't noticed a huge difference between that and...
Hi there. Orkambi user for a few years now. Two copies of Delta F508. Correct me if I am wrong, but this latest Trikafta drug does not improve the level of corrected CTFR over that of Orkambi, correct? Its basically just coverage of more mutations and not a notch forward as far as percentage of...
32 yr old male. Diagnosed around 4. No lung related symptoms of CF until pneumonia at 27 which resulted in my 1st hospitalization. I recovered and then did not see lung related symptoms again until 29. Since then, its been a daily thing. I am always coughing up buckets and buckets of this nasty...
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