Recent content by PinkRaysOfSunshine

... the best thing that has happened to us lately is arionna getting a new nebulizer (compresser thingie) some how the prescriptions got mixed up..... we were on our way home from a long 2 week stay in the hospital and the pharmacy called and said that they needed a hard copy of the script faxed...

... the best thing that has happened to us lately is arionna getting a new nebulizer (compresser thingie) some how the prescriptions got mixed up..... we were on our way home from a long 2 week stay in the hospital and the pharmacy called and said that they needed a hard copy of the script faxed...

... the best thing that has happened to us lately is arionna getting a new nebulizer (compresser thingie) some how the prescriptions got mixed up..... we were on our way home from a long 2 week stay in the hospital and the pharmacy called and said that they needed a hard copy of the script faxed...

i dont have cf and i dont know... alot about it.. but my daughter does.. and i know everytime her poop gets running and greasy and real stinky they increase her creon and her zantac.... ....... if she misses creon.. its HORRIBLE...... im up all night walking the floors and singing lullabys.. and...

i dont have cf and i dont know... alot about it.. but my daughter does.. and i know everytime her poop gets running and greasy and real stinky they increase her creon and her zantac.... ....... if she misses creon.. its HORRIBLE...... im up all night walking the floors and singing lullabys.. and...

i dont have cf and i dont know... alot about it.. but my daughter does.. and i know everytime her poop gets running and greasy and real stinky they increase her creon and her zantac.... ....... if she misses creon.. its HORRIBLE...... im up all night walking the floors and singing lullabys.. and...

Since KY started the newborn screening... arionnas dr said that he sees TONS of really young patients now.. where as before.. it was all babys that were at least a few months old.. usually 2 years old..... still arionna is yet to be the youngest one he's seen yet.. at 4 days old...

Since KY started the newborn screening... arionnas dr said that he sees TONS of really young patients now.. where as before.. it was all babys that were at least a few months old.. usually 2 years old..... still arionna is yet to be the youngest one he's seen yet.. at 4 days old...

Since KY started the newborn screening... arionnas dr said that he sees TONS of really young patients now.. where as before.. it was all babys that were at least a few months old.. usually 2 years old..... still arionna is yet to be the youngest one he's seen yet.. at 4 days old...

Does she have any digestive problems? I know Arionna had a psedomonas infection in her lungs for like over a month and i kept takin her to the cf clinic over and over and i told them its worse at night.. like to the point that she CANT SLEEP and they said that it was reflux..... put her on...

Does she have any digestive problems? I know Arionna had a psedomonas infection in her lungs for like over a month and i kept takin her to the cf clinic over and over and i told them its worse at night.. like to the point that she CANT SLEEP and they said that it was reflux..... put her on...

Does she have any digestive problems? I know Arionna had a psedomonas infection in her lungs for like over a month and i kept takin her to the cf clinic over and over and i told them its worse at night.. like to the point that she CANT SLEEP and they said that it was reflux..... put her on...

u know after I had Arionna I turned into a germ-a-phobe... but i honestly have never looked to see WHAT kind of germs it is that im killing? oh... and my aunt told me not to use sprays... (i was sprayin lysol on anything and everything i could find) cause she read its bad for sissy's lungs...

u know after I had Arionna I turned into a germ-a-phobe... but i honestly have never looked to see WHAT kind of germs it is that im killing? oh... and my aunt told me not to use sprays... (i was sprayin lysol on anything and everything i could find) cause she read its bad for sissy's lungs...

u know after I had Arionna I turned into a germ-a-phobe... but i honestly have never looked to see WHAT kind of germs it is that im killing? oh... and my aunt told me not to use sprays... (i was sprayin lysol on anything and everything i could find) cause she read its bad for sissy's lungs...