Recent content by Poptart

Your words have brought me comfort and tears. We are not diagnosed yet. We are waiting for the blood test to cone back. We meet with the genetics doctors for the first the first time tomorrow. We believe our 13 year old son has CF. Thank you for sharing your thoughts and growth over the last...

Your words have brought me comfort and tears. We are not diagnosed yet. We are waiting for the blood test to cone back. We meet with the genetics doctors for the first the first time tomorrow. We believe our 13 year old son has CF. Thank you for sharing your thoughts and growth over the last...

Your words have brought me comfort and tears. We are not diagnosed yet. We are waiting for the blood test to cone back. We meet with the genetics doctors for the first the first time tomorrow. We believe our 13 year old son has CF. <br /> <br />Thank you for sharing your thoughts and growth...

First I have to say that you all are some of the kindest and most supportive group of people I have ever witnessed. I have been lurking for a few weeks while we are waiting for gene test to come back. I would love your honest thoughts on my son's situation. I keep wavering between denial and...

First I have to say that you all are some of the kindest and most supportive group of people I have ever witnessed. I have been lurking for a few weeks while we are waiting for gene test to come back. I would love your honest thoughts on my son's situation. I keep wavering between denial and...

First I have to say that you all are some of the kindest and most supportive group of people I have ever witnessed. I have been lurking for a few weeks while we are waiting for gene test to come back. I would love your honest thoughts on my son's situation. I keep wavering between denial and...

Thanks for responding! The gene test is for the full 1500 panal so I think that should cover it. He has never been cultured in his sinuses? Not sure what that even means actually. Does not have ulcers. Has been scoped 5 times and alwways has acid erosion and severe gastritis on the biops. I...

Thanks for responding! The gene test is for the full 1500 panal so I think that should cover it. He has never been cultured in his sinuses? Not sure what that even means actually. Does not have ulcers. Has been scoped 5 times and alwways has acid erosion and severe gastritis on the biops. I...

Thanks for responding! The gene test is for the full 1500 panal so I think that should cover it. <br /> <br />He has never been cultured in his sinuses? Not sure what that even means actually. <br /> <br />Does not have ulcers. Has been scoped 5 times and alwways has acid erosion and severe...

First I have to say that you all are some of the kindest and most supportive group of people I have ever witnessed. I have been lurking for a few weeks while we are waiting for gene test to come back. I would love your honest thoughts on my son's situation. I keep wavering between denial and...

First I have to say that you all are some of the kindest and most supportive group of people I have ever witnessed. I have been lurking for a few weeks while we are waiting for gene test to come back. I would love your honest thoughts on my son's situation. I keep wavering between denial and...

First I have to say that you all are some of the kindest and most supportive group of people I have ever witnessed. I have been lurking for a few weeks while we are waiting for gene test to come back. I would love your honest thoughts on my son's situation. I keep wavering between denial and...

Hello, We are in that 6 week wait to see a genetics doc for genetic testing. So forgive my ignorance, I am just trying to understand how this all works. This site has been extremely helpful. I have seen people discuss being "cultured" for some type of infections. It appears that CF patient's...

Hello, We are in that 6 week wait to see a genetics doc for genetic testing. So forgive my ignorance, I am just trying to understand how this all works. This site has been extremely helpful. I have seen people discuss being "cultured" for some type of infections. It appears that CF patient's...

Hello, <br /> <br /> We are in that 6 week wait to see a genetics doc for genetic testing. So forgive my ignorance, I am just trying to understand how this all works. This site has been extremely helpful. <br /> <br />I have seen people discuss being "cultured" for some type of infections. It...