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Update as of today: I Do NOT have CF.
Sweat test came back negative at 16 (R) and 14 (L)
I will however, continue to raise awareness about this horrible disease.
Blessings!
What happens with a person that has CF and does not take their enzymes when they eat? Besides stomach aches, do they have really oily loose stools??? does it happen every time some one forgets to take their enzymes, or just some of the time??? Is stomach cramping common with this also? What if...
Does anyone else deal with fainting because they lose so much salt due to their CF?? Especially in the summer time? Also is low blood pressure common with people with CF?? The doctor said I am losing too much salt on a daily basis and also I need to gain 10 pounds. (I eat all the time and...
I was wondering when your primary care doctor (Not your CF doctor) cultures your throat, let's say for Strep, do they ONLY look for the strep bacteria? Or if you had something else growing would it usually pop up on the culture? I was wondering if it was possible to miss other bacteria, if...
Thanks for your reply. I just had an MRI done on my head, and it showed my sinuses inflamed and my nasal polyps have came back :(
My ENT seemed concerned on the phone. He said that he was not sure why my polyps are back and why my sinuses look even worse than they were before the surgery I had...
I do Neil med sinus rinse (the clear bottle), I take singular and I also do my pur mist steam Inhaler but I still get drainage. I have been on steriod nasal sprays too.
Other symptoms
Well I have always had digestive problems my whole life but every DR I went to about that could not find...
Does anyone else get REALLY bad drainage from their nose to their throats??? I do frequently and it hurts so bad. I have not been diagnosed with Cf yet. but I was just wondering if this was normal. The drainage is so bad I can't swallow or eat, I look in the back of my throat and it coated with...
Update: I still don't have any answers :(
Yesterday I went to my regular doctors office because I have not been feeling well lately.
I have been throwing up sticky thick mucus a lot lately. My doctor just told me it was acid reflex.
It was so embarrassing I was in the waiting room and I kept...
I am not sure... I thought everybody's sweat is supposed to be salty? My face and lips taste funny after I have been out sweating but this has always been the case.
I saw a GI doctor once when I was little when I was having failure to thrive (Before the GH shots)...The GI doctor told me I...
thanks everyone for replying. I'm just so nervous because the warning signs have been there. Should I tell my regular docs that one doctor suspected CF and I never followed up with it? I'm just really not sure what steps to take... my regular drs already think I'm crazy because I have been sick...
Hello everyone I am new to this forum. I am not sure where to begin, or if I just sound crazy...but is it true that CF can be mild and diagnosed in early adulthood? I am wondering because some of the symptoms just seem to describe me. I was supposed to get a sweat test done when I was in grade...
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