Cystic Fibrosis Forum (EXP)

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Recent content by RachElizza

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    CF Care in Germany

    Hi, I am living in Germany for three months, but am hoping to find a permanent job here. However, I want to know about CF care in Germany. I found out that pre exsisting condition does not matter when it comes to insurance here. What does a typical doctor's visit look like? What is the...
  2. R

    Urgent! Need to find better Adult CF Center

    Leo, I just wanted you to know that I ended up moving my care to the Adult CF Clinic at Vanderbilt in Nashville, TN. It is a long drive, but well worth it. I have been very impressed with the medical professionals at Vanderbilt. The clinic has a completely different atmosphere compared to the...
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    Moving: a different CF Clinic

    Thank you for your feedback! I transferred my care to the Vanderbilt Adult CF Clinic in Nashville, TN. I have been very impressed with the all the medical professionals I've come in contact with. I could not have ask for a better transition, it has been very smooth.
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    Anyone with Cystic Fibrosis taken ACCUTANE for acne?

    I have struggled with cystic acne since I was 13, now I am 24 and the struggle continues. I have been seeing a dermatologist since I was 13. I have tried dozens of different topical creams, some worked for me but it was only a matter of time before my body built up a resistance. I have also...
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    Help! Newly diagnosed with CF related Diabetes

    Gorf, It's amazing the difference taking soda out if your diet can make! I hope to be able to change my diet to avoid usuing insulin if I can. You mentioned activity level, how does that coincide with diabetes? Can you still be as active as you want? Does it help to be more active?
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    Help! Newly diagnosed with CF related Diabetes

    Thank you! Reading this made me feel much better. I am downloading the Reddit app now!
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    How is your clinic run?

    Wow! This sounds like an ideal clinic visit. I have never had an experience like this. I am always left in the waiting room for at least an hour, usually longer. After I am taken back to a room no one observes contact precautions. Sometimes I see just a nurse practitioner and they try to send...
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    Help! Newly diagnosed with CF related Diabetes

    At my clinic appointment yesterday I was informed that my blood work from three months ago indicated that I have CF related Diabetes. I was shocked that they waited until my clinic appointment to tell me instead of letting me know when they received the results. I was even more shocked when I...
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    Moving: a different CF Clinic

    I will be transferring my care to a different CF Clinic. Does anyone have advice on questions to ask, or anything that will help make the transition smoother and get off to a good start?
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    Urgent! Need to find better Adult CF Center

    I live in the Birmingham area.
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    Urgent! Need to find better Adult CF Center

    I also live in Alabama and am having trouble getting the care I need from my current Adult CF clinic. I have wondered if I can get the care I need at Vanderbilt in Nashville. Does anyone have feedback on their clinic? Leo, have you had any success in finding a new clinic? I would live to know...
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    Anyone with CF participating in Cross Fit?

    I have a lot of friends that are participating in and LOVING Cross Fit. It seems to be more than just a good workout, but also a community that really encourages one another. I, personally, could use the encouragement. I am afraid that the work outs may be too intense for me to handle, because...
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