Cystic Fibrosis Forum (EXP)

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Recent content by rAnDiMKdir

  1. R

    Cystic Fibrosis is a Business!!!!!!!!

    Please, I'd love to hear your explanation of the digestive issues we face with CF and how they are non-existent, created and/or imagined? Man, you need a dose of one single day without enzymes for a CFer and I bet you'd be happy to support that pharmacy's BUSINESS!
  2. R

    Cystic Fibrosis is a Business!!!!!!!!

    Please, I'd love to hear your explanation of the digestive issues we face with CF and how they are non-existent, created and/or imagined? Man, you need a dose of one single day without enzymes for a CFer and I bet you'd be happy to support that pharmacy's BUSINESS!
  3. R

    Cystic Fibrosis is a Business!!!!!!!!

    Please, I'd love to hear your explanation of the digestive issues we face with CF and how they are non-existent, created and/or imagined? <br /> <br />Man, you need a dose of one single day without enzymes for a CFer and I bet you'd be happy to support that pharmacy's BUSINESS!
  4. R

    Input on Funding for a Innovative CF InPatient Hospital

    LouLou, A couple of times when I needed a tune-up, my CF doctor allowed me to go to this local doctor's inpatient hospital. My private insurance paid just as if I was in a regular hosptial. (BTW: Joint Commission approved hospital). He had a resp therapist come in and service only me during...
  5. R

    Input on Funding for a Innovative CF InPatient Hospital

    LouLou, A couple of times when I needed a tune-up, my CF doctor allowed me to go to this local doctor's inpatient hospital. My private insurance paid just as if I was in a regular hosptial. (BTW: Joint Commission approved hospital). He had a resp therapist come in and service only me during...
  6. R

    Input on Funding for a Innovative CF InPatient Hospital

    LouLou, <br /> <br />A couple of times when I needed a tune-up, my CF doctor allowed me to go to this local doctor's inpatient hospital. My private insurance paid just as if I was in a regular hosptial. (BTW: Joint Commission approved hospital). He had a resp therapist come in and service...
  7. R

    Input on Funding for a Innovative CF InPatient Hospital

    So, I'm totally disciplined to be admitted when my CF Dr. thinks I need IV antibiotics for a 'tune-up'. However, in our area, that means an admission to the state charity hospital. The conditions and accomodations are not the best, which has me thinking of a stand-alone inpatient facility...
  8. R

    Input on Funding for a Innovative CF InPatient Hospital

    So, I'm totally disciplined to be admitted when my CF Dr. thinks I need IV antibiotics for a 'tune-up'. However, in our area, that means an admission to the state charity hospital. The conditions and accomodations are not the best, which has me thinking of a stand-alone inpatient facility...
  9. R

    Input on Funding for a Innovative CF InPatient Hospital

    So, I'm totally disciplined to be admitted when my CF Dr. thinks I need IV antibiotics for a 'tune-up'. However, in our area, that means an admission to the state charity hospital. The conditions and accomodations are not the best, which has me thinking of a stand-alone inpatient facility...
  10. R

    28 days OFF cayston ISSUES

    So, I started Cayston last month, did 28 days, now I'm on my OFF 28 days. This is the beginning of my third week and I am feeling it!!!! I was doing TOBI prior to Cayston but due to my wanting to conceive, we moved to Cayston since it's a Class B drug. So, do any of you have horrible issues...
  11. R

    28 days OFF cayston ISSUES

    So, I started Cayston last month, did 28 days, now I'm on my OFF 28 days. This is the beginning of my third week and I am feeling it!!!! I was doing TOBI prior to Cayston but due to my wanting to conceive, we moved to Cayston since it's a Class B drug. So, do any of you have horrible issues...
  12. R

    28 days OFF cayston ISSUES

    So, I started Cayston last month, did 28 days, now I'm on my OFF 28 days. This is the beginning of my third week and I am feeling it!!!! I was doing TOBI prior to Cayston but due to my wanting to conceive, we moved to Cayston since it's a Class B drug. <br /> <br />So, do any of you have...
  13. R

    Morning Blues! Feel Yuckie! Help?

    HEy! Mornings are the worst for me. WHen I wake up, my lower lobes are very tight and constricted. I feel like I have a belt tied around my lower ribs. I'm usually very, very tired and groggy! It takes me quite a few minutes to get in the groove of getting going. Anyone else feel Yuckie when...
  14. R

    Morning Blues! Feel Yuckie! Help?

    HEy! Mornings are the worst for me. WHen I wake up, my lower lobes are very tight and constricted. I feel like I have a belt tied around my lower ribs. I'm usually very, very tired and groggy! It takes me quite a few minutes to get in the groove of getting going. Anyone else feel Yuckie when...
  15. R

    Morning Blues! Feel Yuckie! Help?

    HEy! Mornings are the worst for me. WHen I wake up, my lower lobes are very tight and constricted. I feel like I have a belt tied around my lower ribs. I'm usually very, very tired and groggy! It takes me quite a few minutes to get in the groove of getting going. Anyone else feel Yuckie when...
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