Cystic Fibrosis Forum (EXP)

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Recent content by rbk2337

  1. R

    Any CF Male's out there on Kalydeco or Orkambi that have gone through IVF ?

    I know this question is targeting very very few CF males, but just curious to see if there is a link between these medications and sperm production issues. Any comments of successful / unsuccessful sperm retrieval on these meds would be grateful .
  2. R

    IVF: Male Factor Issue

    Hello, I have a questions for male CF'ers that have gone through IVF or tried to go through it. I recently started the process due to CF and CBAVD and hit an issue in the middle of it. I did the standard IVF blood work and LH hormone and testosterone came back slightly low. Dr didn't think...
  3. R

    Kalydeco Off Label in Canada

    Hello, I am trying to procure Kalydeco for an off label mutation in Canada. My doctor is willing to write a prescription, but from what I heard through my clinic is that Vertex is refusing to fill the prescription. Has anyone been able to procure Kalydeco off label in Canada? Also, does anyone...
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