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some info, hope this helps...
I'm not sure how these resources would apply to your daughter.
http://www.ncbi.nlm.nih.gov/pubmed/11101688
http://www.ncbi.nlm.nih.gov/pubmed/16189704
http://www.cftr2.org/browse.php
http://www.genet.sickkids.on.ca/cftr/SearchPage.html
Take care and God bless,
Rich
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