Recent content by rmklaus

Hello, Thank you for sharing your information with me about Vancomycin. I got my first dose this morning and every thing went well. I got a little red but no itching. I will be getting it over an hour period. Once again I thank you all for sharing this with me.

Hello, I have questions for any one here that has been on Vancomycin ( spelling may not be right). I start my first dose tomorrow morning at the hospital at 8 am. I'm wondering what side affects most people have had? I'm also wondering what to expect as far as side affects?Thanks to all in...

Hello, I suffer from arthritis also and I take Lortabs twice daily. I think prednisone is a good pain killer for me but my DR refuses to put me on it for my pain so he put me on Lortabs and they help better than the prednisone for me. I just wanted to add my 2 cents about my arthritis.Take Care

Hello, I was just wondering what other CFers Mutations where? Mine are ^F508/G551D Take Care

Hello Alaina, I am on Tobramycine and Fortaz for 2-3 weeks. I find out Monday or Tuesday if I have to go on Vancomycin which would be to treat MRSA if it is flared up again. I don't deal with coughing up blood very well, but since it seems to be happening more often I just go with it. I have...

Hello, I'm starting IV's for Pneumonia. I have been coughing up blood for the past five days <img src="i/expressions/face-icon-small-frown.gif" border="0"> . I been having yucky junk coming up from my lungs. I had a sputum culture done yesterday so hopefully we will hear about it by Friday. I...

Hello, I have had a very bad reaction to TOBI and I'm wondering if any one else has had the same or a reaction they didn't like to TOBI? I did my first one last night after all my other inhaled meds. I felt good until I laid down. My throat felt like it was on fire and it was scratchy nothing I...

Hello, I went to clinic yesterday and my CF DR told me to start the pulmozyme again. He feels it will help me more than going with out it. This is how he told me to try it for 1 full month and then see if my PFT's change or if I start feeling better. He told me to do a prove treatment wait...

I have had MRSA for about a year now and my DR only treats it when it flares up. I have been sick a little more often with the MRSA but my main problem with it is it will just drains me. I sleep for most of the day and I just relax the whole day. It also causes server pain in my lower back and...

Hello, I suffered from Hemoptosis in July of last year and it was very scary but a lot of people CF friends helped me through it. I can tell you for me there were no symptoms, it just happened. I will try to explain but I must warn you it might be something you would rather not hear about. I...

I do agree with you Rami Najjar that is the only way to live with CF. I live that way each and everyday of my life, even when I have my bad days I keep my spirits high and thank God for giving me the strength to fight all the down sides to CF.....God Bless You Rami!!!!!!!!

I have been on Zithromax 250mg everyday for the past 5 years. I have a port in my chest so oral meds don't really work to well so I just get the IV's.

I am in El Dorado, Kansas

Wow, you have studyed this. I guess I have never thought of the Pari LC Star. I use the LC Plus right now for only the proventils but now I am thinking about the LC Star. I never heard of the Mobilaire 50 psi compressor, I think I will check into that too. Thank you for your intense information...

Hello To all, I have a question about nebulizers. Which ones do you use and why? I ask this question because for about 6 years I had been using the Passport machine with the Durable Side Stream nebulizers. About 3 weeks ago I decided to give Pari LC Plus a try with the ProNeb Ultra. I have been...