Recent content by robbiekay

Thank you all so much, it really does help to have so much support from the CF community. I miss him so much sometimes I am ok and at peace, other times I feel like I just cannot stand the pain. I miss his smile, his humor. Him editing my papers watching American I . I was at a restaurant today...

Thank you all for the support, I just feel lost , Michael was so young only 23 that's hard to except, I just can't believe he is gone, he was just here we were watching tv, laughing, eating and living together. How do I just keep living life with out my son. He was the center of my universe

thank everyone for your support

Dear son, I miss you sooooo much! Michael you have been gone just over a week and my heart does not want to except that you are gone . You were the best son ever and way to young To go sweet heart! G

My son had to do a test like that for ssd just remember you are sooooo sick make sure to rember you can not run you get winded easily, cough allot don't sleep, and bring all your meds In a bag :) good luck

Does he have allot of infections or hospitalizAtions. What he does today may not effect him untill he is older, I would have a dr talk to him about antibiotic resistant bacteria, does he ever take even one dose of his antibiotics?slipping medication and treatments will only get him closer to end...

Are you talking about a port a cath or a pic line that is the port acath accessed . A pic line my son Comfort Care So I did it I said those five magical words "I CHOOSE 100% COMFORT CARE" it doesn't seem like something big and I don't know why I made it a bigger thing than it was but I said it...

I don't have cf but my son does he is 23 getting ready for a double lung transplant and a liver transplant I would love someone to talk to , also I was born in 1970 :)

Be OK! I just want to be ok be ok be ok today

ok so doesnt your friend know you have cf? he shouldn't be offering you cigs of any kind . but dont worry to much it is vapor, I quit smoking using e-cigs about 4years ago, before they were the rage everyone laughed at my toy cig but now look. any ways my husband is now trying to quit smoking...

our cf center compared sitting in public hot tubs like sitting in a bowl of bacteria soup which you are inhaling, ick I am not sure about saunas, but stay away from public hot tubs <3 I know they are so tempting, before we knew our son would always go hang out in the hot tub at our condo complex...

Live to breath this is a great way to think of it (L) thank you

Pink robots and fight song by the flaming lips. the fight song reminds me of my son it talks about a boy who has to face things he shouldn't have to face. and that life is ever changing but the one thing that stays the same is the the sun sun goes up and sun down and everything really just...

free on line Yoga classes sweetninis there is an excellent cite called DoYogawithme.com by David Procyshyn he is great. the video classes are excellent with a very range to choose from and they are all free! my son has increased his lung function which is a big deal but also his range of motion...

My son 23 w cf started a few months back didn't think he would like it but he really digs it! Yae one for mom, he like all the stretching and he is working on what he calls the CF slouch, the fish pose is my favorite for us because it helps to increase lung capacity! Always working on the Pfts...