Recent content by Robynnemarie

I have a 14 almost 15 yr old daughter w/cf. I have a terrible time getting her to take meds, exercise, or eat right. She just doesn't care about herself at this time in her life. Our psychologist says she is going through the normal teen rebellion stage, and is denying her condition. I used...

Your daughter sounds alot like mine 13 years ago... My daughter was born with severe ge reflux, sleep apnea, and had failure to thrive until she was almost a year old. She was mostly in the hospital until she was 3 yrs old. When Kate hit 10 yrs or so, she basically became symptom free until last...

No she doesn't, thats to bad I thought that maybe it would be easier to put on food, or in a drink. Thanks for the information Robin

My daugher take viokase tablet form. I would be interested in the powder form if they make it. I have a very difficult time getting her to take her enzymes. Robynne- mom 14 yr c/f, cfrd

I can say my daugher avoids diary products like the plague. She gets terrible stomach aches, cramping, etc.... I think it is more lactos intolerance? however she did have a milk allergy and was on special formula until she was a year and half or so...... She seemed to have outgrown it until...

Hello, Mother of Daughter 14 w/cf, cfrd, chronic pancreatitis We are from Florida Kate was diagnosed at 1 yr. old, and has been a fighter all her life. At present we are dealing with Kates unwillingness to cooperate when it comes to her medications. Besides that she is a wonderful young lady...

I was told that my daughter had CF when she was 1 yr old. We had alot of problems until she was about 9 yrs old, and she just seemed to get better. I am not sure, but I don't think my daughter had the cf gene. Although she was tested almost 15 years ago. Her diagnosis was based on 4 positive...

I was told that my daughter had CF when she was 1 yr old. We had alot of problems until she was about 9 yrs old, and she just seemed to get better. I am not sure, but I don't think my daughter had the cf gene. Although she was tested almost 15 years ago. Her diagnosis was based on 4 positive...