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http://luckycfmom.blogspot.com/2012/05/response-guided-therapy.html
If you have not been following this blog, you might want to. There is a wealth of information in Rebecca's posts.
Here is her latest:
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<h3 class="post-title entry-title">Response Guided...
CyrilCrodius, there is a facebook site just for people with those two mutations, called
DF508 and 621+1G>T
If you want to join the group, they could have some of the information you are looking for.
Since you mentioned 809 or 661, I am going to stir the pot a little and say that there are at least two people with Delta 508 and 621+1g>t who have benefited from Kalydeco alone.
Since you mentioned 809 or 661, I am going to stir the pot a little and say that there are at least two people with Delta 508 and 621+1g>t who have benefited from Kalydeco alone.
I have a feeling there is some confusion because the G551D groups (Strive and Envision) also went into the PERSIST study extension and the results from Strive plus Persist were shown in poster 204 from the meeting. Again, if there is any more information out there, I am would love to read about it!
I have a feeling there is some confusion because the G551D groups (Strive and Envision) also went into the PERSIST study extension and the results from Strive plus Persist were shown in poster 204 from the meeting. Again, if there is any more information out there, I am would love to read about it!
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