Cystic Fibrosis Forum (EXP)

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Recent content by sahein79

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    Mycobacterium Simiae infection

    I have recently been diagnosed with Mycobacterium Simiae. I cultured it 3 times, and now they have found a 5cm hollow cyst in my right lobe. I was recently hospitalized and given a course of IV's and some oral antibiotics, for multiple infections, including the mycobacterium. They took a biopsy...
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    What do you wish you would have known?

    I was diagnosed at 5 months old. When I was diagnosed, my Mom and Grandmother began juicing for me 6x a day. The scar tissue in my lungs began to dissapear and the Dr.'s were amazed! Juice! Carrots, parsley, cucumbers, celery, whatever you can! I believe it has made a huge difference for me...
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    Obama & Healthcare

    I work full time for a top 100 companies to work for, and I have had several issues with my insurance, as well. They stopped covering my enzymes forcing me to switch to a brand that does not work for me. They sent me a letter stating that Pulmozyme is a specialty drug and they will only pay for...
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    how tall are you?how much do you weigh?

    I am 32, 5'11", and weigh 155. Samantha
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    Anybody try a dairy-free, gluten-free, sugar free diet?

    I eat a gluten-free, dairy-free, and mostly refined sugar free diet. Giving up the dairy really helped me! My mucous production is way down. I also felt extra congestion after eating gluten, so I gave that up, too. Gluten clogs your lymphatic system, too! Sugar depresses the immune system as...
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    Anybody try a dairy-free, gluten-free, sugar free diet?

    I eat a gluten-free, dairy-free, and mostly refined sugar free diet. Giving up the dairy really helped me! My mucous production is way down. I also felt extra congestion after eating gluten, so I gave that up, too. Gluten clogs your lymphatic system, too! Sugar depresses the immune system as...
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    vegetarian

    I eat mostly a vegan, plant based diet. I do not eat dairy because it causes mucous. I eat lots of fruits and veggies to keep myself as alkaline as possible, and they also have great anti-inflamatory properties! She should make sure she eats plenty of nuts, soaked first, and coconut oil is...
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    vegetarian

    I eat mostly a vegan, plant based diet. I do not eat dairy because it causes mucous. I eat lots of fruits and veggies to keep myself as alkaline as possible, and they also have great anti-inflamatory properties! She should make sure she eats plenty of nuts, soaked first, and coconut oil is...
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    To all the bleeders out there...

    I have been taking Gotu Kola ever since I read this and haven't had any more problems. It is inexpensive and can be found at any health food store. In my 45 years, I have discovered things that work for me and keeping me healthy and I would like to share them with you and have you participate...
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    To all the bleeders out there...

    I have been taking Gotu Kola ever since I read this and haven't had any more problems. It is inexpensive and can be found at any health food store. In my 45 years, I have discovered things that work for me and keeping me healthy and I would like to share them with you and have you participate...
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    Any Good CF Doctors in Florida?

    I use to be a patient at Central Florida Pulmonary for years. I saw Dr. Calimano, and i believe he is an excellent Dr. I did have the experience of them outsourcing my IV meds to an infectious disease Dr. which I found weird. The hospital rooms were always top notch, though. I also saw Dr.'s at...
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    Any Good CF Doctors in Florida?

    I use to be a patient at Central Florida Pulmonary for years. I saw Dr. Calimano, and i believe he is an excellent Dr. I did have the experience of them outsourcing my IV meds to an infectious disease Dr. which I found weird. The hospital rooms were always top notch, though. I also saw Dr.'s at...
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    Hemoptysis - Solution without Embolization

    Getting extra bioflavanoids is good for vein strength, too. So eat the white part when you peel a grapefruit or orange <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Hemoptysis - Solution without Embolization

    Getting extra bioflavanoids is good for vein strength, too. So eat the white part when you peel a grapefruit or orange <img src="i/expressions/face-icon-small-smile.gif" border="0">
  15. S

    I want to know what percent of CFers work

    I work full time. I am also about to go back to school. I have a 3 year old as well. I have a supportive partner and family that helps me. My FEV1 is about 82%. Samantha 32 w/cf
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