Recent content by Sami

I hate the hospital here. Cause there arn't that many CF adults that are admitted here the only place they have room for us to go is the dementure ward, and the nurses have no idea how to treat cfs. i had a student nurse ask what cf does once, how bads that? they wont let you into kids after 17...

hi, i have been told that i have to be at least 50kg before i can go on the waiting list for an xplant, but i was wondering how much other people weighed before geting one. and also, how low was your lung function when you got your new lungs?

i have gallbladder problems aswell. apparently mine has shrunk and the doctors said they won't take it out cause it won't help the pain. so i have to live with it. it sucks but pain killers sometimes work.

i have gallbladder problems aswell. apparently mine has shrunk and the doctors said they won't take it out cause it won't help the pain. so i have to live with it. it sucks but pain killers sometimes work.

i like to go out and heve a drink every now and then. i find that if i have a really big night and know that i'm going to suffer the next day i just go home and put water in my feeding machine and let it go while i sleep it off. i feel good when i wake up and i'm not bringing up as much mucus. i...

I had a G-tube put in when i was 11, at first i hated it but now i know that if i didn't have it i wouldn't be around today. it's not as bad as some people think. Has you son tried drinking ensure or whatever his doc want's him to use? i know some CF's who drink the stuff and don't need a G-tube.

I'm from Townsville and i think the Cowboys are going to win tonight. GO COWBOYS <img src="i/expressions/heart.gif" border="0"> I LOVE MATTY JOHNS AND RYAN GIRDLER <img src="i/expressions/rose.gif" border="0">

Is anyone out there in Australia a fan of NRL footy? If so who do you think is going to win the grand finals? I know it's off the subject of CF, but Oh Well!!!

I take Somac, it's acually beneficial to take antacid's. They can help with the digestion of any enzymes you or your 4yr old might be taking.

I'm from Australia and I have never heard of ADEK's before. Can I ask what are they and what do they do? Has anyone from Australia heard of them?

I really don't know what to say to make you feel any better. I just hope you and your family don't give up hope and stick by your brother. My whole family has been reading your post's and we all are praying for your brother and family. hang in there

I completely understand what your saying kylie and i just want to say thank you for sticking up for me and i'm sure pam would appreciate it aswell.

hey, i use nutra-75, caligen and some times i drink that scandi shake stuff, but it's not very popular here so we don't get it alot. i tried drinking ensure but i could never hold it down (YUK)<img src="i/expressions/face-icon-small-tongue.gif" border="0">

it doesn't bother me what my friends say, i know they love me <img src="i/expressions/face-icon-small-tongue.gif" border="0"> they like seeing peoples reaction when they say stuff like that <img src="i/expressions/devil.gif" border="0">

hang in there buddy, i'm sure your doc with find something for you. i'm on zoloft but i know thats not for everyone. sometimes all you need is a change of diet to help give you a bit of a pick me up. ask your doc anyways. hope all goes well