Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Recent content by Sarah Wilhite Johnson

  1. S

    Orkambi Journey with 19 y/o Allan Diagnosed at 4 months

    Hello! My daughter is 14 and has G551D/DF508. She started taking Kalydeco in March of 2012. In 5 months she gained 20 pounds, grew 5 inches, and felt so much better that we actually didn't know how to handle a "normal" child! Fat does make a difference - she's not a big breakfast eater but we...
Top