Cystic Fibrosis Forum (EXP)

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Recent content by SFLMAN

  1. S

    Tobi question

    My wife didnt do well on Tobi She tried it twice and said it made her very short of breath and caused tingeling feeling in her chest.She also started to make a crackeling sound while breathing after she did it.
  2. S

    Remembering......

    I knew it would be a tough month but I never expected it to start this soon I am already remembering the first day we left on our cruise March 19 2005 I can still see the smile on her face as the ship was leaving.Well today is the 18th and I am down way down 3 months in and its like yesterday.I...
  3. S

    Invitation to CF loss group

    anything out there for spouses?
  4. S

    G5 AND MEDS FOR ANYONE IN MIAMI

    Anoyone local intrested PM me.
  5. S

    An indirectly CF related problem

    hello my name is maria.Im sams daughter.your not the only one on valentines day were gonna do all these things for our moms and dads.my mom passed away.what was the worst about it is that i never got to give her one last hug because i was at someones house.and he called me when i knew.when i got...
  6. S

    An indirectly CF related problem

    hello my name is maria.Im sams daughter.your not the only one on valentines day were gonna do all these things for our moms and dads.my mom passed away.what was the worst about it is that i never got to give her one last hug because i was at someones house.and he called me when i knew.when i got...
  7. S

    cool funny cf t-shirts!!!

    I just bought two one for Maria and one for me.Catch a cure.We are going to wear them on the boat.Thanks a lot!!!
  8. S

    cool funny cf t-shirts!!!

    I just bought two one for Maria and one for me.Catch a cure.We are going to wear them on the boat.Thanks a lot!!!
  9. S

    Help for Maria

    I want to know if anyone else lost a spose recently?If so is there any reccomendations of helping my daughter deal with the situation.I lost my mother at 5 and it was tough!.I dont want to miss something and have her fall into a depressed state.It has been alnost 6 weeks and Im starting to see...
  10. S

    Help for Maria

    I want to know if anyone else lost a spose recently?If so is there any reccomendations of helping my daughter deal with the situation.I lost my mother at 5 and it was tough!.I dont want to miss something and have her fall into a depressed state.It has been alnost 6 weeks and Im starting to see...
  11. S

    F508 MUTATION

    My wife had the same gene and our daughter has only one copy.I would like to give you some good news about her she was almost illness free for the first 24 years of her life she did do all of her treatments as perscribed and her mother not only had her to keep healthy but her older sister and...
  12. S

    F508 MUTATION

    My wife had the same gene and our daughter has only one copy.I would like to give you some good news about her she was almost illness free for the first 24 years of her life she did do all of her treatments as perscribed and her mother not only had her to keep healthy but her older sister and...
  13. S

    the movie on Lifetime today

    Anyone find out when it will be on again I was at work and missed it. Please email me if you see it comming on again.Thanks
  14. S

    the movie on Lifetime today

    Anyone find out when it will be on again I was at work and missed it. Please email me if you see it comming on again.Thanks
  15. S

    DOES ANYONE WITH CF COUGH UP BLOOD?

    My wife had alot of bleeds the worst was in an airplane at 33000ft. We were freaking out most of her bleeds were small but at the worst times, once it happened in the middle of the jungle in a cabanna and of course in an airplane. She could usually tell when they were going to happen and used...
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