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I want to see if my 9 yr old qualifies for the Vertex double delta study that is coming up and see what centers will be enrolling in the study. I called our CF center and they didn't know much about the study. I know I have seen the guidelines for studies on vertex, but I can't remember where to...
Your daughter's sweat test was VERY low, passed the newborn screening with flying colors, she is growing very well and isn't having respiratory problems. I can see why the doctor's aren't concerned, testing shows she doesn't have CF and she is healthy. You seem on top of things, so keep it in...
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