Cystic Fibrosis Forum (EXP)

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Recent content by Shaunessy

  1. S

    genetic testing for new mutation specific drugs?

    Tom - good point. Perhaps I'm being overly optimistic that the drugs in clinical trials will work and be approved. If they do go through, I wonder how the insurance companies will respond to genetic testing requests... The $2-3k for testing doesn't seem like much compared to the regular costs of...
  2. S

    genetic testing for new mutation specific drugs?

    Tom - good point. Perhaps I'm being overly optimistic that the drugs in clinical trials will work and be approved. If they do go through, I wonder how the insurance companies will respond to genetic testing requests... The $2-3k for testing doesn't seem like much compared to the regular costs of...
  3. S

    genetic testing for new mutation specific drugs?

    Tom - good point. Perhaps I'm being overly optimistic that the drugs in clinical trials will work and be approved. If they do go through, I wonder how the insurance companies will respond to genetic testing requests... The $2-3k for testing doesn't seem like much compared to the regular costs of...
  4. S

    genetic testing for new mutation specific drugs?

    Tom - good point. Perhaps I'm being overly optimistic that the drugs in clinical trials will work and be approved. If they do go through, I wonder how the insurance companies will respond to genetic testing requests... The $2-3k for testing doesn't seem like much compared to the regular costs of...
  5. S

    genetic testing for new mutation specific drugs?

    Tom - good point. Perhaps I'm being overly optimistic that the drugs in clinical trials will work and be approved. If they do go through, I wonder how the insurance companies will respond to genetic testing requests... The $2-3k for testing doesn't seem like much compared to the regular costs of...
  6. S

    genetic testing for new mutation specific drugs?

    Thanks for the ideas! We'll start making phone calls to our insurance and the clinical trial company. If I find out anything helpful, I'll be sure to share. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  7. S

    genetic testing for new mutation specific drugs?

    Thanks for the ideas! We'll start making phone calls to our insurance and the clinical trial company. If I find out anything helpful, I'll be sure to share. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  8. S

    genetic testing for new mutation specific drugs?

    Thanks for the ideas! We'll start making phone calls to our insurance and the clinical trial company. If I find out anything helpful, I'll be sure to share. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  9. S

    genetic testing for new mutation specific drugs?

    Thanks for the ideas! We'll start making phone calls to our insurance and the clinical trial company. If I find out anything helpful, I'll be sure to share. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  10. S

    genetic testing for new mutation specific drugs?

    Thanks for the ideas! We'll start making phone calls to our insurance and the clinical trial company. If I find out anything helpful, I'll be sure to share. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  11. S

    genetic testing for new mutation specific drugs?

    Jake was last screened for CF mutations around 2002. They identified one dF508 but not his second mutation. This makes me think they missed a missense mutation? Now that these new mutation specific drugs are coming out, we'd like Jake to get screened again. He asked his CF center about this but...
  12. S

    genetic testing for new mutation specific drugs?

    Jake was last screened for CF mutations around 2002. They identified one dF508 but not his second mutation. This makes me think they missed a missense mutation? Now that these new mutation specific drugs are coming out, we'd like Jake to get screened again. He asked his CF center about this but...
  13. S

    genetic testing for new mutation specific drugs?

    Jake was last screened for CF mutations around 2002. They identified one dF508 but not his second mutation. This makes me think they missed a missense mutation? Now that these new mutation specific drugs are coming out, we'd like Jake to get screened again. He asked his CF center about this but...
  14. S

    genetic testing for new mutation specific drugs?

    Jake was last screened for CF mutations around 2002. They identified one dF508 but not his second mutation. This makes me think they missed a missense mutation? Now that these new mutation specific drugs are coming out, we'd like Jake to get screened again. He asked his CF center about this but...
  15. S

    genetic testing for new mutation specific drugs?

    Jake was last screened for CF mutations around 2002. They identified one dF508 but not his second mutation. This makes me think they missed a missense mutation? <br /> <br />Now that these new mutation specific drugs are coming out, we'd like Jake to get screened again. He asked his CF center...
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