Cystic Fibrosis Forum (EXP)

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Recent content by sistercf

  1. S

    Cf-patients in Russia, what do they need most ?

    Hi Imogene and thank´s for your answer. I haven´t got this cf-girl as a sponsorchild yet. It´s going to be so, but all information isn´t ready and finished yet. I just asking during the wait until all is finished :)
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    Cf-patients in Russia, what do they need most ?

    Hi ! I didn´t know where to put my question, but finally i put it here. Im going to be a sponsor through an organisation who normally take care of russian kids during summer, here in Sweden. Some kids can´t travel and one of these is a CF girl who im going to be a sponsor to. I know people in...
  3. S

    Someone who wants a penpal ?

    Hi everyone ! You can write the first letter if you want to. Please mail me at cf72@spray.se for my homeaddress. /Carola
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    Endometriosis ?

    Lilwebert25...how is your symptoms ?
  5. S

    How can lung transplants change in 10, 20 years?

    Dont be left in your "old" cf-Life, welcome the new instead, either it is for a year or 20 years :)
  6. S

    How can lung transplants change in 10, 20 years?

    The 29th on november I celebrate 18 years with my lungs. I know a woman who had heir for almost 30 yeras soon. We both live in Sweden.
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    Endometriosis ?

    Anyone who knows ?
  8. S

    Flushing the port with Heparin ?

    AllthebestforLiam...thank you so much, it sounds that you solve my problems :)
  9. S

    Flushing the port with Heparin ?

    Gorf...thank´s for your answer. I will call directly to a cf-nurse and tell them. I finished my antibiotics for this time, yesterday. But it will be used soon again.
  10. S

    Flushing the port with Heparin ?

    Hi ! The last Iv-cures I have been taken, I have been feeling a strange feeling when I flush with Heparin. I wonder if someone more feel like me when they flush their port-a-cath ? And if you Think it´s serious to talk about my doctor about ? 10 seconds after I flushed the heparin, my hearing...
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    Endometriosis ?

    Hi ! Is endometriosis usual among cf-ladies ? I just got the diagnose and whonder how usual it is ? Any one who want to tell about it ?
  12. S

    Someone who wants a penpal ?

    You are most welcome and write to me if you want to
  13. S

    TOBI Podhaler

    I tried Tobi Podhaler and was looking forward to use that instead of IV, but I cough so much that I culdn´t continue with it. It´s very different between cf-users. My sister can take it and she has Booth cf and asthma
  14. S

    Night Sweats

    Do you know if it´s common among us cf-woman to get in menopause earlier than healthy woman ?
  15. S

    Night Sweats

    Hi ! I started to sweat at nights for almost a year ago, but in my case the doctor Thinks it´s an early stage of menopause, but im only 41.
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