Cystic Fibrosis Forum (EXP)

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Recent content by skydiverchic

  1. S

    Never had a tune up

    i escaped tune ups for 28 years and only have been in the hospital twice in the last 2 years. my fev1 is around 100%
  2. S

    I think my vest machine is dying...what now?

    They will replace it with a new one. I had mine go out a few months ago. i called them and the next day i received the new one. they will have u ship the old one back to them in the box that the new one came in. they are fast because they know that we need them. they might give you the newest...
  3. S

    DF508 question

    My mutation is doubleDF508 and ive lived a pretty healthy life. The only reason i was diagnosed was because my 2 older brothers were tested before I was born. Since they both had cf they decided to test me also. Part of my healthiness was due to keeping active and being in sports growing up. The...
  4. S

    I have CF and I lost my older brother from CF

    I know where you are coming from. I have an older brother Anthony who die in 2002 from cf and it crashed my world. I tried to talk to people about it but they couldn't understand the component of having the same disease that i watched kill my brother. Then in 2008 my oldest brother Wesley died...
  5. S

    DDF508

    I have dd508. turning 30 in a few days. My last pfts were 102%. I was diagnosed at birth cause I had 2 older brothers who had cf.
  6. S

    DDF508

    I have dd508. turning 30 in a few days. My last pfts were 102%. I was diagnosed at birth cause I had 2 older brothers who had cf.
  7. S

    Cayston Finger Slicing Club

    I am joinging the club to. I slice my finger sometimes and dont even realize it til later. Done it prolly 3-4 times so far.
  8. S

    Cayston Finger Slicing Club

    I am joinging the club to. I slice my finger sometimes and dont even realize it til later. Done it prolly 3-4 times so far.
  9. S

    How far do you travel to get to your clinic?

    i drive 6 hours one way and my clinic is in a different state but WELL WORTH the drive. I go to National Jewish in Denver,CO.
  10. S

    How far do you travel to get to your clinic?

    i drive 6 hours one way and my clinic is in a different state but WELL WORTH the drive. I go to National Jewish in Denver,CO.
  11. S

    Treating MRSA

    i am on inhaled gentamicin every other month for my mrsa.
  12. S

    Treating MRSA

    i am on inhaled gentamicin every other month for my mrsa.
  13. S

    Treating MRSA

    i am on inhaled gentamicin every other month for my mrsa.
  14. S

    What is your FEV1 Score?

    Last visit was 104%
  15. S

    What is your FEV1 Score?

    Last visit was 104%
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