Recent content by slhogan

Thank you for the book recommendations, links, and kind words :) We have been very worried, but it looks like he's going to thankfully pull through this flare-up. After a few days on the ventilator, he was finally taken off and just moved our of the ICU and into a regular room. It was a very...

Back to my original post that began this thread.... I'm still looking for CF literature that deals with end-stage CF. As I posted earlier, it seems like everything I find online falls into two categories: 1) Overly-upbeat/positive patient information about how to avoid end-stage; 2) Medical...

Thank you for all your good advice. It's very overwhelming to read through all this (and all the websites I am reading right now). I can't believe how much work goes into keeping the body functioning. It's no wonder he has been so overwhelmed with it all. I'm very sorry to share that this...

He does have family but it's not intact, and he was shuffled from relative to relative a lot as a child. As an adult, he doesn't really have a relationship with any of them. No he doesn't have a strong drive. He's pretty passive about the whole thing. Actually, he struggles with...

Hello! I'm new to this forum. My college-age daughter is in a relationship with a young man with CF. I am trying to learn more so I can support my daughter as she supports her boyfriend. Specifically, I am trying to find resources where I can learn more about the end-stages of CF, quality of...

My name is Laura. My college-age daughter is in a relationship with a young man with CF. I am trying to learn more, so I can support her as she supports him.