Recent content by smiles

Cystic fibrosis Original article Long-term multicentre randomised controlled study of high frequency chest wall oscillation versus positive expiratory pressure mask in cystic fibrosis [*=left]Maggie Patricia McIlwaine1, [*=left]Nancy Alarie2, [*=left]George F Davidson3, [*=left]Larry C...

He takes his enzymes regularly and does peglyte maintenance daily. Not sure why he keeps running into trouble

Heard it from a physiotherapist at the clinic our kids go to.

My son keeps getting his intestines clogged. We've put 16 liters of peglyte through his g-tube and a couple of days later he's clogged up again. We give him 1-3 cups of peg each day as well. Have any of you had experience with this and have suggestions?

I've heard that there was a study done comparing the vest therapy to PEP and apparently PEP came out on top. Anyone have more details on that?

I heard that the results of this study are out and they showed that the vest landed people on IV treatment more often. Anyone have more details on that?

When my kids first got their buttons they kept bursting as well. It turned out that there was a whole batch that was defective from the manufacturer. It's worth checking up on that with your nurse. Good luck

Are the vests used only in the U.S? I'm wondering if there's anyone else out there who uses the PEP or other therapies? Why would they not recommend the vest in Canadian clinics?

Here's a picture of the PEP

We live in Ontario and the vest is not used here as far as I know. We use the PEP device and it requires the girls total concentration for approximately twenty minutes each. I think they're in the middle of a study to see if the VEST is as effective as PEP.

We don't do the vests- sounds like a big time saver! The clinic our daughters go to, don't recommend it yet. Not sure why. As far as compressors, the PARIs are real slow. I find that they work well for only for a few weeks after I get them fixed and then they slow down considerably. What...

Does anyone have any helpful tips on how to better manage our evening routines with our 2 CF daughters, ages 11 and 13? As they get older, homework becomes more time consuming and it's often a struggle to get everything done at a normal hour. They come home at 4:30 from school and we try to get...

Thanks for all your help!! How do I get hold of D. Freedman. We don't live in the U.S.

We suspected celiac because it runs in our family but she was tested for it and it came back negative.

My teenage daughter has been having problems with her stomach for over five months now. She kept getting backed up and having leakage despite being on clearlax every day. She had numerous washouts through her g-tube despite. Her stomach is now clear, being on 750 ml of peglyte every day but...