Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Recent content by Smirizzle

  1. S

    Work

    I am with you. I was diagnosed last year, missed 3 months of work. Prior to, working 40+ hours a week as outpatient manual physical therapist, former professional modern dancer, all around general fitness enthusiast. Been sick more than friends but I never let it stop me. Now, barely making it...
  2. S

    Those who have applied to disability

    Hi Kmhbeauty, They will also ask a lot questions regarding how much you were working: hours/days etc and during that time were there any accommodations made for your health: having to adjust shifts/less tables/something that would be a specific change for you that you wouldn't need if you were...
  3. S

    Recurring Fevers and shortness of breath

    Wow! I too have had similar issues. Started an antibiotic 2 weeks ago, 3 days in I got worse. Low-grade fever comes and goes. I'm with Jamest and think there is an unwanted colony in there, my ENT wants to culture sinuses. I have had intermittent issues like this where it seems I have some sort...
  4. S

    mstein just diagnosed with cystic fibrosis

    Hi, I was diagnosed at 32 last year. I still have fluctuating emotions about it. I do keep telling myself I have always had this. This morning I went to my primary because I was coughing up green mucus. In the past, I would have shrugged my shoulders and let whatever it was run its course. But I...
  5. S

    Who are you in a nut shell

    Hi, I'm Rachel. I was diagnosed at 32. It started with gastric issues that just wouldn't go away. (Don't need to describe the stools I was having as most of you are familiar!) After every test under the sun at GI docs, I decided to get my own genetic test at 23andme to help guide diagnostics...
  6. S

    Dx last wk at 32; any information on disease progression?

    Thank-you for the very organized information, Welshwitch. The progression began this summer. I began losing weight and was having constant loose, bulky, greasy stools. I kept telling doctors it was like no matter what I ate, I wasn't absorbing any of it. They ran me through the battery of usual...
  7. S

    Dx last wk at 32; any information on disease progression?

    Thank you all for your input. I have started daily lung clearance and have noticed some improvements. My sputum culture came back positive but since it is the holidays I have to wait to see the doctor to know exactly what I grew. It's all new to me and I am doing pretty well so far in keeping...
  8. S

    Dx last wk at 32; any information on disease progression?

    I was diagnosed by an accredited CF clinic and am still undergoing testing to determine my treatment. I have had recurrent sinus infections, bronchitis and breathing issues my whole life. Recently, this summer everything just seemed to increase in severity. In the past two months, I lost 15...
Top