Cystic Fibrosis Forum (EXP)

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Recent content by specialk

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    Metaneb does anyone use this?

    I used the metaneb when I was in the hospital a few weeks ago. It's pretty weird at first, but it seemed to be very effective from what I could tell, even though I only did it for like 2 days. I don't think its available to the public yet, but if you get a chance to try it at the hospital, go...
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    Ever set off a smoke alarm while doing treatments?

    I've never been on a cruise but have had plenty of experience setting off fire alarms. I have set them off in hotel rooms and my dorm room. Have you noticed a particular medicine setting it off? I do albuterol, saline, and amikacin but amikacin is the only one that ever sets it off. I've heard...
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    PICC Cover Issues-- Very complex

    I always used my old socks and cut the toe out. Make sure they're loose or stretched out some because squeezing your arm with it is not a good idea. I also tried cutting a piece of leggings to fit over it. That works pretty well too. It's all about what's most comfortable to you.
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    20 Weeks Pregnant and found out baby has DDF508 CF - What to expect, and what to do?

    I can't imagine how anyone could give up a precious baby just because they have CF. Yes, I understand that it can be challenging news, and there are a lot of thoughts going through your head. My parents had some of the same thoughts when I was diagnosed at age 3. They were shocked and scared...
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