Recent content by Stannon06

So far she is asymptomatic. That being said she is only 6 wks old. She was the first child diagnosed in Alabama from the mandatory CF screening. She is on Ultrase and ADEK. She is gaining weight. When we brought her home she was 6 lb. 6 oz. Last Friday she was 9 lbs. ! We are hoping and...

So far she is asymptomatic. That being said she is only 6 wks old. She was the first child diagnosed in Alabama from the mandatory CF screening. She is on Ultrase and ADEK. She is gaining weight. When we brought her home she was 6 lb. 6 oz. Last Friday she was 9 lbs. ! We are hoping and...

So far she is asymptomatic. That being said she is only 6 wks old. She was the first child diagnosed in Alabama from the mandatory CF screening. She is on Ultrase and ADEK. She is gaining weight. When we brought her home she was 6 lb. 6 oz. Last Friday she was 9 lbs. ! We are hoping and...

So far she is asymptomatic. That being said she is only 6 wks old. She was the first child diagnosed in Alabama from the mandatory CF screening. She is on Ultrase and ADEK. She is gaining weight. When we brought her home she was 6 lb. 6 oz. Last Friday she was 9 lbs. ! We are hoping and...

So far she is asymptomatic. That being said she is only 6 wks old. She was the first child diagnosed in Alabama from the mandatory CF screening. She is on Ultrase and ADEK. She is gaining weight. When we brought her home she was 6 lb. 6 oz. Last Friday she was 9 lbs. ! <br /> <br />We are...

Steve, Ou 3 1/2 week old daughter, Ella Kate, was just diagnosed with CF by Childrens Hospital in Birmingham, Alabama. Quite honestly, we were overwhelmed by the information given to us on that day. My first question is one you may want to reply back to me at my private email address. I...

Thank you for your time and info. Our daughter, Ella Kate, is currently taking enzymes and vitamins A,D,E & K. The enzymes have seemd to take effect, as the consistancy and color of her BM's changed. The vitamins are hard to get down. They taste like Flintstones, which aren't bad, but to her...

Thank you for your time and info. Our daughter, Ella Kate, is currently taking enzymes and vitamins A,D,E & K. The enzymes have seemd to take effect, as the consistancy and color of her BM's changed. The vitamins are hard to get down. They taste like Flintstones, which aren't bad, but to her...

Thank you for your time and info. Our daughter, Ella Kate, is currently taking enzymes and vitamins A,D,E & K. The enzymes have seemd to take effect, as the consistancy and color of her BM's changed. The vitamins are hard to get down. They taste like Flintstones, which aren't bad, but to her...

Thank you for your time and info. Our daughter, Ella Kate, is currently taking enzymes and vitamins A,D,E & K. The enzymes have seemd to take effect, as the consistancy and color of her BM's changed. The vitamins are hard to get down. They taste like Flintstones, which aren't bad, but to her...

Thank you for your time and info. Our daughter, Ella Kate, is currently taking enzymes and vitamins A,D,E & K. The enzymes have seemd to take effect, as the consistancy and color of her BM's changed. The vitamins are hard to get down. They taste like Flintstones, which aren't bad, but to her...

Hi all, My wife and I just got the news today that our 3 wk old daughter tested positive for CF. She has the df508/3659delc mutation. Our doctor knew absolutely nothing about 3659delc. He couldn't comment to the severity of her CF. He just said it was rare. I have read the previous...

Hi all, My wife and I just got the news today that our 3 wk old daughter tested positive for CF. She has the df508/3659delc mutation. Our doctor knew absolutely nothing about 3659delc. He couldn't comment to the severity of her CF. He just said it was rare. I have read the previous...

Hi all, My wife and I just got the news today that our 3 wk old daughter tested positive for CF. She has the df508/3659delc mutation. Our doctor knew absolutely nothing about 3659delc. He couldn't comment to the severity of her CF. He just said it was rare. I have read the previous...

Hi all, My wife and I just got the news today that our 3 wk old daughter tested positive for CF. She has the df508/3659delc mutation. Our doctor knew absolutely nothing about 3659delc. He couldn't comment to the severity of her CF. He just said it was rare. I have read the previous...