Cystic Fibrosis Forum (EXP)

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Recent content by StefanDOMINATECF

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    Wife not responding to IV's like normal, First Bronchoscopy

    Incomudrox, I am really looking forward to hearing more info about Nrf2 and CFTR function. I had previously come across this article, http://dev.ersnet.org/uploads/Document/38/WEB_CHEMIN_5818_1264776571.pdf which seemed like a pretty exhaustive list, so I am really curious to see your research.
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    Wife not responding to IV's like normal, First Bronchoscopy

    Incomudrox, I am really looking forward to hearing more info about Nrf2 and CFTR function. I had previously come across this article, http://dev.ersnet.org/uploads/Document/38/WEB_CHEMIN_5818_1264776571.pdf which seemed like a pretty exhaustive list, so I am really curious to see your research.
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    Wife not responding to IV's like normal, First Bronchoscopy

    Another thing I wanted to add... You should talk to your doctor again about the actual PFT values your wife needs to have in order to qualify for the clinical trial. I studied healthcare law and economics in college and it seems these standards are created not primarily with a concern for...
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    Wife not responding to IV's like normal, First Bronchoscopy

    Another thing I wanted to add... You should talk to your doctor again about the actual PFT values your wife needs to have in order to qualify for the clinical trial. I studied healthcare law and economics in college and it seems these standards are created not primarily with a concern for...
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    Wife not responding to IV's like normal, First Bronchoscopy

    I'm kind of in a similar situation to your wife right now in terms of where my PFTs are, except I haven't cultured MRSA yet. I understand how frustrating it can be to experience such a substantial decline in PFTs, as I myself have gone from around 90% in my late teens into the 30-40% range now...
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    Wife not responding to IV's like normal, First Bronchoscopy

    I'm kind of in a similar situation to your wife right now in terms of where my PFTs are, except I haven't cultured MRSA yet. I understand how frustrating it can be to experience such a substantial decline in PFTs, as I myself have gone from around 90% in my late teens into the 30-40% range now...
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    salt treatments

    Thanks so much for posting this! I went to the Salt Room in Orlando, FL while I was on vacation there and felt like it definitely helped lower the inflammation in my lungs. Since I live in north Dallas, I am going to schedule an appointment with this place ASAP-- it's only 10 min. from my...
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    salt treatments

    Thanks so much for posting this! I went to the Salt Room in Orlando, FL while I was on vacation there and felt like it definitely helped lower the inflammation in my lungs. Since I live in north Dallas, I am going to schedule an appointment with this place ASAP-- it's only 10 min. from my...
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    Can somebody give me some answers, please!

    No problem. That's what these forums are for (or at least they should be for). We need to encourage eachother and exchange ideas <img src="i/expressions/face-icon-small-smile.gif" border="0"> For what its worth, whenever there's an unexpected drop in PFTs like this, my doc tells me that both he...
  10. S

    Can somebody give me some answers, please!

    No problem. That's what these forums are for (or at least they should be for). We need to encourage eachother and exchange ideas <img src="i/expressions/face-icon-small-smile.gif" border="0"> For what its worth, whenever there's an unexpected drop in PFTs like this, my doc tells me that both he...
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    Can somebody give me some answers, please!

    I'm really sorry to hear about this. I experienced a similar precipitous decline myself when I was around your age--had pfts in the 90s throughout my childhood w/ few symptoms, and then boom, dropped to the low 30s for a few years.Nowmy new baseline is in the 50s and it wasn't until doctors...
  12. S

    Can somebody give me some answers, please!

    I'm really sorry to hear about this. I experienced a similar precipitous decline myself when I was around your age--had pfts in the 90s throughout my childhood w/ few symptoms, and then boom, dropped to the low 30s for a few years.Nowmy new baseline is in the 50s and it wasn't until doctors...
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