Cystic Fibrosis Forum (EXP)

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Recent content by sue35

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    Tooth Extracted

    I had two teeth pulled instead of getting a root canal. It went fine. I just got local anesthesia, like you would if you got a cavity filled. There was a lot of pressure and it wasn't pleasant, but I got through it fine. When I got my wisdom teeth out I got laughing gas (that ended up not...
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    To all the green smoothies drinkers...and anyone with pseudo!!

    For you smoothie drinkers what blender do you use? Mine just broke and I am looking into the expensive Vitamix or Blendtec but don't want to spend the money if something works just as good.
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    To all the green smoothies drinkers...and anyone with pseudo!!

    For you smoothie drinkers what blender do you use? Mine just broke and I am looking into the expensive Vitamix or Blendtec but don't want to spend the money if something works just as good.
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    IV side effects

    I am on colistin and zoysn IVs and have been on them for a week so far. I have numbness, which I have gotten before and isn't that big of a deal. But I also have a weird feeling in my chest. It feels like all my chest/lung muscles are cramping up. It is making me a little short of breath. I have...
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    IV side effects

    I am on colistin and zoysn IVs and have been on them for a week so far. I have numbness, which I have gotten before and isn't that big of a deal. But I also have a weird feeling in my chest. It feels like all my chest/lung muscles are cramping up. It is making me a little short of breath. I have...
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    Green Smoothies

    Thanks to a couple of you I am now on the green smoothie kick! So far, the only ones I have made have strawberries, spinach, and one banana in them. I know there are a ton of recipes online but are there any specific ones people like? I would love to know, so I can vary it up! And a huge thank...
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    Green Smoothies

    Thanks to a couple of you I am now on the green smoothie kick! So far, the only ones I have made have strawberries, spinach, and one banana in them. I know there are a ton of recipes online but are there any specific ones people like? I would love to know, so I can vary it up! And a huge thank...
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    PFT Goal's thread. Trying to achieve 60% FEV1.

    PFT Goal's thread. Trying to achieve 60% FEV1. NOT CULTURING MSSA OR PA! WOOT! Ok...back to the topic, that is great news about your lung function! I have become inspired to start doing more alternative treatments because of some of you. I started NAC, the green smoothies and now would love to...
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    IV's & alcohol

    I was told that I could have a drink or two but to have a glass of water in between. I have never had a problem. I am currently on IV collision and zoysn and plan on having a glass of wine tomorrow. But I wouldn't have more than two at the most, but that is just me
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    IV's & alcohol

    I was told that I could have a drink or two but to have a glass of water in between. I have never had a problem. I am currently on IV collision and zoysn and plan on having a glass of wine tomorrow. But I wouldn't have more than two at the most, but that is just me
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    PFT Goal's thread. Trying to achieve 60% FEV1.

    PFT Goal's thread. Trying to achieve 60% FEV1. NOT CULTURING MSSA OR PA! WOOT! Do you have information on the inhaled glutathione? I tried looking it up on the site but couldn't find any recent in for? I can't handle HTS so this could be a great option for me. Does your doctor know you are on it?
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    DF508 and Kalydeco

    So if I get a prescription and give it to CF Services and they ask for proof, that is only for patient support? Does my doctor just say I am not interested in that?
  13. S

    DF508 and Kalydeco

    So if I get a prescription and give it to CF Services and they ask for proof, that is only for patient support? Does my doctor just say I am not interested in that?
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    NAC taste

    The OGTT is the worst! When I first did it the receptionist told me I could drink water to get through it because otherwise I couldn't do it. Then, after I finished, I was told that water ruined the test so I had to come back the next day and do it again! I did get the pharmaNAC. Do you think...
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    NAC taste

    As part of starting to be more proactive about CF I am finally trying NAC. I received it a couple days ago and am going to start it tomorrow. Here is my problem. I have heard it tastes terrible and I have a bad gag reflex. I can't even have carbonation without spitting it back up. I have tried...
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