Recent content by SuzanneNez

I notice that you did not post my comment about finding out that I have a definitive diagnosis from a CF center of "Non-CF Bronchiectasis as a result of a mutated CF gene," rather than adult onset CF, as diagnosed at a non-CF center early this spring. I was replying to the question about...

Hi Dank -- I was first diagnosed last summer by my pulmonologist, who had only dealt with one CF patient in the past. I tested positive for only one gene, but I already knew, through doing genealogy, that CF was in my father's family. A half-sister died of it when she was 11. My coughing...

Thanks for the welcome, Imogene. I'm so intrigued about someone being diagnosed at age 76; would you mind giving me the site for Chris Baldwin's blog so I can read more? Thank you for providing this amazing forum. Suzanne

Thanks for the response, Bill. I've got an appt. with the adult CF center; just got it yesterday, and am very excited. Do you have gastro issues as well, or is it mostly confined to your lungs?

Thanks for the good info, Adrienne. I just signed up and gave you as the referral.

I was diagnosed several months ago with Adult Onset CF, with a DeltaF508 gene. Only one gene, but it has apparently mutated and turned into full-blown CF. I am a very young and active 74 years old, and am currently waiting for an appt. with an Adult CF center in L.A. county. Has anyone ever...

Hi - I'm Suzanne (you can all call me Grandma; you're all so young!). I'm 74 years old, living in So. California, and was just diagnosed with Adult On-Set CF after an otherwise healthy and active life. I'm still healthy & active, but am concerned about what lies ahead. I received the Delta F508...