Recent content by tapestry

I would like to buy a pulse-oximeter for my daughter. She's had at least one scary incident where we needed to know her O2 sats and, being at home, weren't able to get that info without a trip to the ER (it was late at night). I'd rather avoid the ER if possible if that ever happens again. I...

I would like to buy a pulse-oximeter for my daughter. She's had at least one scary incident where we needed to know her O2 sats and, being at home, weren't able to get that info without a trip to the ER (it was late at night). I'd rather avoid the ER if possible if that ever happens again. I...

I would like to buy a pulse-oximeter for my daughter. She's had at least one scary incident where we needed to know her O2 sats and, being at home, weren't able to get that info without a trip to the ER (it was late at night). I'd rather avoid the ER if possible if that ever happens again. I...

I'm posting this after reading some of the responses to the thread, "A new book, any thoughts" by Mommafirst. My daughter, Cassidy, 2 1/2, has CF. We bought the Mallory's 65 Roses book a while ago but she isn't interested in it very much. I think she'll like it when she's older but right now...

I'm posting this after reading some of the responses to the thread, "A new book, any thoughts" by Mommafirst. My daughter, Cassidy, 2 1/2, has CF. We bought the Mallory's 65 Roses book a while ago but she isn't interested in it very much. I think she'll like it when she's older but right now...

I'm posting this after reading some of the responses to the thread, "A new book, any thoughts" by Mommafirst. My daughter, Cassidy, 2 1/2, has CF. We bought the Mallory's 65 Roses book a while ago but she isn't interested in it very much. I think she'll like it when she's older but right now...

My daughter, 11 months, also doesn't cough after her CPT. She does cough durring her breathing treatments, though that could be because she's getting over a cold <img src="i/expressions/face-icon-small-smile.gif" border="0"> Before we discovered the wonder of Baby Einstein videos I had to hold...

My daughter Cassidy was diagnosed with CF a month ago. Before that we thought we had baby troubles because we thought Cassidy was allergic to dairy and soy. Everthing about our diets had to change (she's breastfed still so whatever I eat she reacts to). Ever since she was a month old we've been...

Thanks! Her pulmonoligist switched her to Prevacid Solutabs last night. We'll wait a week and see how that goes. If that doesn't work (fingers crossed, PLEASE WORK!) then I'll try eliminating dairy and soy from her diet again. Only problem with that is everything I've been using to ammend her...

The last month has been pure hell. It's a fight every single day to get my daughter, Cassidy, to eat. She's eleven months old and she gets 4-5 bottles a day, plus stage 2 baby food. She doesn't want to eat anything. Not the baby food, not her bottles. She'll eat cheerios without a fit but that's...

Thanks for all the responses. It was ADEKs drops we were giving her before and we had to stop giving them because she was throwing up. Just today her doctor's office got us a sample of cherry flavored Vitamax drops. Hopefully she'll tolerate those a bit better!

We enrolled my daughter in the Solvay Wee Care program so she could get her enzymes free. They also provide vitamin drops as well, which her doc said is good because she needs those. The thing is, those vitamin drops are just about the nastiest stuff on the planet. They're a purtid yellow color...

Thanks for all the different responses and stories. Reading all of your perspectives has definitely helped. We had a second doctor visit and after her doctor gently reminded us how devestating it would be for Cassidy to get something like RSV we decided we will be taking her out of daycare. I'm...

I have to disagree with winace on this one. Every pregnancy is a risk. Every one. As someone else said earlier, having a child without CF does not mean that that child will automatically be healthy. And just because a child has CF it doesn't mean their life is no longer worth living. My daughter...

I'm trying to adjust my daughter's diet to get in the extra calories she needs. She's only 10 months old and still eating stage 2 baby food and some finger foods - like crackers and such. How do other parents manage to sneak in those extra calories on a daily basis? Do you just give your kids a...