Recent content by Tessalonikki

Hi , My kids just got diagnosed in November and have been put on TOBI (nebulizer) for 30 days on and 30 days off. I am not sure yet if it worked - we are in the 30 day off now and have to get cultured again next week. I will keep you posted, Tanja Mom to Nicky (3) and Tessa(14 mo.) both w/cf

Hi , My kids just got diagnosed in November and have been put on TOBI (nebulizer) for 30 days on and 30 days off. I am not sure yet if it worked - we are in the 30 day off now and have to get cultured again next week. I will keep you posted, Tanja Mom to Nicky (3) and Tessa(14 mo.) both w/cf

Hi Renee, Thank you for sharing your situation, which btw. I commend you for taking on and doing all you are doing. Your situation could not have been easy either blending the two families like you have. I hope eventually I will get there as well. For us it is a little different. When I met my...

Hi Renee, Thank you for sharing your situation, which btw. I commend you for taking on and doing all you are doing. Your situation could not have been easy either blending the two families like you have. I hope eventually I will get there as well. For us it is a little different. When I met my...

Sorry Julie, I guess I am tired, I posted it twice! Tanja <img src="i/expressions/face-icon-small-smile.gif" border="0">

Sorry Julie, I guess I am tired, I posted it twice! Tanja <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hi Julie, My kids thake the following meds. Ultrase Enzymes (Nicky 3-4 w/meals, and 2-3 w/snacks - Tessa 2-3 w/meals and 1-2 w/snacks) ADEK once a day (Nicky 2 ml and Tessa 1 ml) Vitamin K once a week (half a tablet each) Omaprezole (Generic Prilosec) Nicky 5 ml once a day and Tessa 1,5 ml...

Hi Julie, My kids thake the following meds. Ultrase Enzymes (Nicky 3-4 w/meals, and 2-3 w/snacks - Tessa 2-3 w/meals and 1-2 w/snacks) ADEK once a day (Nicky 2 ml and Tessa 1 ml) Vitamin K once a week (half a tablet each) Omaprezole (Generic Prilosec) Nicky 5 ml once a day and Tessa 1,5 ml...

Thanks Melissa for this info. So it is actually out there and it is possible to get.Let me know how it works for you when you do try it. I was wondering if it is just for adults, since the research mentioned that it has not been studied for sideeffects in infants or very young children yet...

Thanks Melissa for this info. So it is actually out there and it is possible to get.Let me know how it works for you when you do try it. I was wondering if it is just for adults, since the research mentioned that it has not been studied for sideeffects in infants or very young children yet...

That is great news for you guys! Good Luck Julie and Mark Tanja (Mom to Nicky3 and Tessa 14 months both w/cf)

That is great news for you guys! Good Luck Julie and Mark Tanja (Mom to Nicky3 and Tessa 14 months both w/cf)

Hi Dee, Thanks for your words and the advice about the candles. I will try that next time somebody walks in with anything. I did not know that these oils killed airborne bacteria. Yeah! Everyday I learn something new and useful. I so wish I could have my husband share a bit in the...

Hi Dee, Thanks for your words and the advice about the candles. I will try that next time somebody walks in with anything. I did not know that these oils killed airborne bacteria. Yeah! Everyday I learn something new and useful. I so wish I could have my husband share a bit in the...

Hi Jodi, I am sorry that you are having such a difficult time at the very start of her life. I understand and know the feeling when you are in and out of the NICU. Both of my kids have CF. My son was diagnosed right at birth and it was confirmed a few weeks later when the genetic tests came...