Recent content by thekidsarealright

Hey there! For us, Pulmozyme takes about 12-15 minutes and nebulized TOBI takes about the same. I don't know about the others.

No, that didn't either <img src="i/expressions/face-icon-small-sad.gif" border="0">. I'll message it to you, LittleLab4CF.

Oh, I'm sorry!! I hope this works (I had to split the link so that it would fit): http://online.x-plain.com/client/P_F5_PUBWL.asp?SNT=MjQxMTczNjE0&CID=MTc0MQ==&CltName= V2VzdGNoZXN0ZXIgTGlicmFyeSBTeXN0ZW0%3Cbr%20/%3E=&IDN=X1dlc3RM&Media=Ug==&DL= There are MANY topics. Sinus surgery is located...

I believe that there are risks, just like with ANY surgery, but the risks are rare. Bleeds, infection, and when someone's picking around in your sinuses with a sharp object, your eyes and brain are at risk (I know that sounds scary!!). I've studied up on it and have never heard of that being...

You really shouldn't have a fever OR wheezing...the burning is pretty normal. Better let somebody know ASAP.

My daughter cultured it when she was 2 years old. She went between IV Vancomycin, Linezolid, and then Vanco via inhalation. By the time she was 4, she had stopped culturing it at all. We did the eradication techniques, as well, a few times. For her, it worked but it took some time. She is 7, now...

My daughter cultured it when she was 2 years old. She went between IV Vancomycin, Linezolid, and then Vanco via inhalation. By the time she was 4, she had stopped culturing it at all. We did the eradication techniques, as well, a few times. For her, it worked but it took some time. She is 7, now...

I remember when I had my little girl at the ped's office for a one month check-up. She was hungry and we had been waiting forever. I got her enzymes out, put them into her applesauce, and proceeded to feed them to her before I gave her a bottle. A woman sitting next to me told me (after she had...

I remember when I had my little girl at the ped's office for a one month check-up. She was hungry and we had been waiting forever. I got her enzymes out, put them into her applesauce, and proceeded to feed them to her before I gave her a bottle. A woman sitting next to me told me (after she had...

I don't have CF, but I have a daughter and a cousin with CF. I have read much about what offends/annoys CFers concerning others that do not have it and don't understand it. Seems to be a lot! So, here's my question to help those w/o CF know how to talk to and respond to someone that has it: How...

I don't have CF, but I have a daughter and a cousin with CF. I have read much about what offends/annoys CFers concerning others that do not have it and don't understand it. Seems to be a lot! So, here's my question to help those w/o CF know how to talk to and respond to someone that has it: How...

If you want to watch this video, it is very helpful. It's a bit basic, but basic is the best place to start! http://www.nlm.nih.gov/medlineplus/tutorials/cysticfibrosis/htm/_no_50_no_0.htm CF is confusing and there's a LOT that is still unknown about it. I've been "exposing" myself to CF info...

If you want to watch this video, it is very helpful. It's a bit basic, but basic is the best place to start! http://www.nlm.nih.gov/medlineplus/tutorials/cysticfibrosis/htm/_no_50_no_0.htm CF is confusing and there's a LOT that is still unknown about it. I've been "exposing" myself to CF info...

Poor guy! I couldn't help but laugh out loud when I read your post, though! My cousin did that when he was in school just to avoid the embarrassment (he had a LOT of pancreatic issues) and we were grossed out, but laughed and kinda respected his fearlessness. My daughter on the other hand gets...

Poor guy! I couldn't help but laugh out loud when I read your post, though! My cousin did that when he was in school just to avoid the embarrassment (he had a LOT of pancreatic issues) and we were grossed out, but laughed and kinda respected his fearlessness. My daughter on the other hand gets...