Cystic Fibrosis Forum (EXP)

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Recent content by tonrsoul82

  1. T

    Hospitalization INC real soon.

    Well even though I was in the hospital like 2 1/2 months ago.. Caught a nasty bug and can't seem to get rid of it, and think friday, maybe monday ( should go in friday) will be in for a 2 week stay. All of my tell-tell signs are showing.. Bloody nose 1-2 times a day from the pressure of...
  2. T

    Hospitalization INC real soon.

    Well even though I was in the hospital like 2 1/2 months ago.. Caught a nasty bug and can't seem to get rid of it, and think friday, maybe monday ( should go in friday) will be in for a 2 week stay. All of my tell-tell signs are showing.. Bloody nose 1-2 times a day from the pressure of...
  3. T

    Hospitalization INC real soon.

    Well even though I was in the hospital like 2 1/2 months ago.. Caught a nasty bug and can't seem to get rid of it, and think friday, maybe monday ( should go in friday) will be in for a 2 week stay. All of my tell-tell signs are showing.. Bloody nose 1-2 times a day from the pressure of...
  4. T

    possible cure in 10 years

    Well I, myself like to do the "labrat" studies that go on in denver to help further the cause for findign a cure, BUT out of all of the studies I have done " gene therapy enzyme tests ect" none of them come clost to coming up with a cure. Gene therapory would/could work to a extent, BUT to cure...
  5. T

    possible cure in 10 years

    Well I, myself like to do the "labrat" studies that go on in denver to help further the cause for findign a cure, BUT out of all of the studies I have done " gene therapy enzyme tests ect" none of them come clost to coming up with a cure. Gene therapory would/could work to a extent, BUT to cure...
  6. T

    possible cure in 10 years

    Well I, myself like to do the "labrat" studies that go on in denver to help further the cause for findign a cure, BUT out of all of the studies I have done " gene therapy enzyme tests ect" none of them come clost to coming up with a cure. Gene therapory would/could work to a extent, BUT to cure...
  7. T

    Question PICC line/Vest Therapy

    Last year or so I have been on PICC lines.  In the hospital I take my vest in use it their.  Never had the tightness you talked about.
  8. T

    Question PICC line/Vest Therapy

    Last year or so I have been on PICC lines.  In the hospital I take my vest in use it their.  Never had the tightness you talked about.
  9. T

    Question PICC line/Vest Therapy

    Last year or so I have been on PICC lines.  In the hospital I take my vest in use it their.  Never had the tightness you talked about.
  10. T

    Do you tell people...?

    I used to hide my CF from strangers/ co-workers and the severity of it.  This past 4 months though I got a new job.  I hid it from most of the people as well.  Then I started to get sicker to the point of hospitalization.  And one of the (pardon the language) goddamn waitresses said I was being...
  11. T

    Do you tell people...?

    I used to hide my CF from strangers/ co-workers and the severity of it.  This past 4 months though I got a new job.  I hid it from most of the people as well.  Then I started to get sicker to the point of hospitalization.  And one of the (pardon the language) goddamn waitresses said I was being...
  12. T

    Do you tell people...?

    I used to hide my CF from strangers/ co-workers and the severity of it.  This past 4 months though I got a new job.  I hid it from most of the people as well.  Then I started to get sicker to the point of hospitalization.  And one of the (pardon the language) goddamn waitresses said I was being...
  13. T

    Those who use colistin?

    Wow never had this problem with any of my inhaled neb treatments.  The only problem I have had with social security is since I went to Part D with all their new bull crap is they don't want to cover my neb medicine BECAUSE I don't live in a group home, or rest home type enviorment.  But I...
  14. T

    Those who use colistin?

    Wow never had this problem with any of my inhaled neb treatments.  The only problem I have had with social security is since I went to Part D with all their new bull crap is they don't want to cover my neb medicine BECAUSE I don't live in a group home, or rest home type enviorment.  But I...
  15. T

    Those who use colistin?

    Wow never had this problem with any of my inhaled neb treatments.  The only problem I have had with social security is since I went to Part D with all their new bull crap is they don't want to cover my neb medicine BECAUSE I don't live in a group home, or rest home type enviorment.  But I...
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