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That is great news! Both of your LO's mutations are considered disease causing?
My LO also has two mutations. One of which has varying outcomes. He had two sweat tests. All results have been in the 14-15 range. He hasn't had another one in over a year, but I am not sure why he hasn't...
Hello,
My LO has these two mutations. He does not have any symptoms so far and has normal sweat tests 14/15 and 15/16. However, the last one was when he was 4 months. He is 19 months old now.
Does your LO take Kalydeco now? It has been approved for R117H and for 2-5 years old since this...
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