Recent content by Turtle

Everyone in the running for that scholarship is exceptional and juggling the challenges of going to college with managing their CF. I bet many if not all of them are members of this community including one I know. It seems to me this forum should encourage people to go to the site and be...

We get our Pulmozyme and Creon through Safeway Pharmacy and they have been consistently great. The only thing they could not fill was Hyper Saline so we get that through the CF Services.

Thanks everyone- your replies have helped me make the decision to switch. I appreciate your input so much!

Hi All! We currently have Blue Shield of CA for our daughter and though it's expensive because it's an individual policy, the coverage is quite good. We now have a chance to go onto my husband's employer's plan which means switching to an Anthem PPO. Does anyone have experience dealing with...

Yes they are treating the Staph with Bactrim- she seems better but still hasn't got her pfts up, especially the small airways. The feeling is that the virus just take forever to clear and then there is a residual trauma in the airways that may or may not clear up over time.

Yes they are treating the Staph with Bactrim- she seems better but still hasn't got her pfts up, especially the small airways. The feeling is that the virus just take forever to clear and then there is a residual trauma in the airways that may or may not clear up over time.

Yes they are treating the Staph with Bactrim- she seems better but still hasn't got her pfts up, especially the small airways. The feeling is that the virus just take forever to clear and then there is a residual trauma in the airways that may or may not clear up over time.

My daughter has been struggling with lower pfts for months and we finally had a bronch which turned nothing up except a bit of staph and roto virus. The docs think the roto virus has just been wrecking havoc but that there's nothing to do but hope it clears up. Has anyone else dealt with this...

My daughter has been struggling with lower pfts for months and we finally had a bronch which turned nothing up except a bit of staph and roto virus. The docs think the roto virus has just been wrecking havoc but that there's nothing to do but hope it clears up. Has anyone else dealt with this...

My daughter has been struggling with lower pfts for months and we finally had a bronch which turned nothing up except a bit of staph and roto virus. The docs think the roto virus has just been wrecking havoc but that there's nothing to do but hope it clears up. Has anyone else dealt with this...

Anyone had experience being admitted at UCSF? We are about to embark on our first hospital stay and would love to hear any first hand advice, especially if you've been to UCSF. Can one leave to go outside and get some fresh air for example? Can a parent spend the night? I know we'll get briefed...

Anyone had experience being admitted at UCSF? We are about to embark on our first hospital stay and would love to hear any first hand advice, especially if you've been to UCSF. Can one leave to go outside and get some fresh air for example? Can a parent spend the night? I know we'll get briefed...

Anyone had experience being admitted at UCSF? We are about to embark on our first hospital stay and would love to hear any first hand advice, especially if you've been to UCSF. Can one leave to go outside and get some fresh air for example? Can a parent spend the night? I know we'll get briefed...

Hi Everyone. We've got the machine now just need a jacket and we'll have a complete vest system. Does anyone have a child size large or even an adult extra small vest (for Hill Rom) that you've outgrown and could pass along? I'm happy to pay something for it and of course would pay for shipping...

Hi Everyone. We've got the machine now just need a jacket and we'll have a complete vest system. Does anyone have a child size large or even an adult extra small vest (for Hill Rom) that you've outgrown and could pass along? I'm happy to pay something for it and of course would pay for shipping...