Cystic Fibrosis Forum (EXP)

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Recent content by vivalafran

  1. V

    Neumathorax and colapsed lung? Heres my story i never had one before

    So sorry this happened to you. My boyfriend has had several pneumos and they're all scary. I would ask your doctors about the pleurodesis (the "stapling" you're talking about). They never had him do that pleurodesis because if there is even a remote chance of you getting a lung transplant later...
  2. V

    Neumathorax and colapsed lung? Heres my story i never had one before

    So sorry this happened to you. My boyfriend has had several pneumos and they're all scary. I would ask your doctors about the pleurodesis (the "stapling" you're talking about). They never had him do that pleurodesis because if there is even a remote chance of you getting a lung transplant later...
  3. V

    arm vs chest port

    My boyfriend and his sister both have CF. He's had 2 chest ports. She had one in her arm but it actually broke and she had to have it removed and she now has one in her chest as well. I would recommend the chest based of their experience, I know it was very painful for her when it broke in her...
  4. V

    arm vs chest port

    My boyfriend and his sister both have CF. He's had 2 chest ports. She had one in her arm but it actually broke and she had to have it removed and she now has one in her chest as well. I would recommend the chest based of their experience, I know it was very painful for her when it broke in her...
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