Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Recent content by windex125

  1. W

    Eyes Burning on Trikafta

    it states me as a new member but I've been a member for over 10yrs - I just hv not been getting on - now I want to know how everyone is doing with the new med
  2. W

    Eyes Burning on Trikafta

    I as well hvg been having watery itchy eyes - I was supposed to hv cataract surgery in March but it got cancelled - I also hv a eye disease called Pterygium which I am going for the surgery hopefully the next 2 weeks - he said after 2 mts. we can do the cataracts - but I still suspect the...
  3. W

    Trikafta Q&A, Experiences, etc.

    Hi all I am a 65yr old woman with only one functioning lung the right collapsed more than 10yrs ago - I was extremely sick last Sept-Oct coughing 4/5hrs straight - mostly dry hacking -the sputum would come later on o2 #4 24/7 - I started this drug Nov 1,2019 after the first week I was singing...
  4. W

    Times are a changing...and I DONT like it!

    I agree as well positive attitude is a main factor in my everyday life as well, I admit I whine occasionally, about 10 yrs or more my doctor suggested a trip to UNC for a possible work up for transplant later on... well a lot of different things went on and I never went low enough in numbers...
  5. W

    sweating in the night

    I am 62 petite female ht 5'wt abt 102/105 yet I as well get night sweats, sometimes stripping off my top as it is stuck to me - hv had MAC since the late 90's only treated with the cocktail once - also colonize MERSA - Printer I never thought that the MAC could be the problem, thought more my...
  6. W

    Celebrex??

    JL I hope your feeling better today, I have used Celebrex in the past for pain and it did help -I had my gallbladder out many years ago, that's what I thought of first when I read yr pain spot. My issues hv been more lung related than digestive - but have had those as well going on. Since my...
  7. W

    DiOS

    Well I see it went through and I've been on he site I think for more than 8-9 years yet it lists me as a new member??? IT's past my bed time at 62 I still have very bad sleeping habits, meaning I'll go to bed now but will still be awake at 2-3am, yet my body is so exhausted... ahhh
  8. W

    DiOS

    I have not been on in awhile as I am still having problems, I type hit send and it does not go through, very frustrating as a matter fact this is my 2nd try tonight. I hv very good results with prune juice once in the morning and before bed. I did Miralax for a year or more, and some others - I...
  9. W

    Article about Mycobacterium and CF

    Thanks for sharing as mentioned many times I was diagnosed with MAC late 90's I was a big gardener at the time vegetables - flowers - and the water on Long Island NY is terrible many minerals and who knows what else - best when you want to take a bath and the water comes out brown? But it's...
  10. W

    Strange response to antibiotics, anyone else experience this?

    Good to hear your feeling better I just did a round of meds as well Nov 1-10 it was supposed to be Nov1-15 but on the 11th I woke up covered in hives from Ceftaroline colonizing MRSA and of course my MAC so I had to cut it short the hives took abt 4-5 days to clear they were all over my chest...
  11. W

    Zyvox Acne Rash Advice

    I posted about this med about a month ago it was my first time using it and asked if anyone on the site had used it as it made me so sick.. I did not get any responses. I felt like I had pneumonia, weak, chills, sweats, low grade fever, I gave it 5 days of use, I always think give it a chance...
Top