Cystic Fibrosis Forum (EXP)

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Recent content by WorriedAunt

  1. W

    My niece was diagnosed last year

    Here's an update: my brother and his wife decided to move my niece to another CF-clinic (from Groningen to Utrecht). They are so happy they made the change because the treatment is night and day difference! They have one doctor there with 2 assistants and they have weekly meetings to discuss all...
  2. W

    My niece was diagnosed last year

    Here's an update: my brother and his wife decided to move my niece to another CF-clinic (from Groningen to Utrecht). They are so happy they made the change because the treatment is night and day difference! They have one doctor there with 2 assistants and they have weekly meetings to discuss all...
  3. W

    My niece was diagnosed last year

    Here's an update: my brother and his wife decided to move my niece to another CF-clinic (from Groningen to Utrecht). They are so happy they made the change because the treatment is night and day difference! They have one doctor there with 2 assistants and they have weekly meetings to discuss all...
  4. W

    My niece was diagnosed last year

    Thanks so much Marjolein! I will ask my brother if that is the forum they go to as well. I know his wife is on there a lot, her first name is Danielle and my niece is Chloë so you may know them. I will definitely check out your blog; thanks so much for the link. That's amazing you had a double...
  5. W

    My niece was diagnosed last year

    Thanks so much Marjolein! I will ask my brother if that is the forum they go to as well. I know his wife is on there a lot, her first name is Danielle and my niece is Chloë so you may know them. I will definitely check out your blog; thanks so much for the link. That's amazing you had a double...
  6. W

    My niece was diagnosed last year

    Thanks so much Marjolein! I will ask my brother if that is the forum they go to as well. I know his wife is on there a lot, her first name is Danielle and my niece is Chloë so you may know them. I will definitely check out your blog; thanks so much for the link. <br />That's amazing you had a...
  7. W

    My niece was diagnosed last year

    Thanks so much Marjolein! I will ask my brother if that is the forum they go to as well. I know his wife is on there a lot, her first name is Danielle and my niece is Chloë so you may know them. I will definitely check out your blog; thanks so much for the link. That's amazing you had a double...
  8. W

    My niece was diagnosed last year

    Thanks so much Marjolein! I will ask my brother if that is the forum they go to as well. I know his wife is on there a lot, her first name is Danielle and my niece is Chloë so you may know them. I will definitely check out your blog; thanks so much for the link. That's amazing you had a double...
  9. W

    My niece was diagnosed last year

    Thanks so much Marjolein! I will ask my brother if that is the forum they go to as well. I know his wife is on there a lot, her first name is Danielle and my niece is Chloë so you may know them. I will definitely check out your blog; thanks so much for the link. <br />That's amazing you had a...
  10. W

    My niece was diagnosed last year

    Thanks Tom and Marjolein for your replies! Marjolein, I know my sister in law is on a Dutch CF-forum so I'm sure it's the one you linked to. And even though I know healthcare in the Netherlands is outstanding, I know sometimes they treat this in a different way in different countries so I was...
  11. W

    My niece was diagnosed last year

    Thanks Tom and Marjolein for your replies! Marjolein, I know my sister in law is on a Dutch CF-forum so I'm sure it's the one you linked to. And even though I know healthcare in the Netherlands is outstanding, I know sometimes they treat this in a different way in different countries so I was...
  12. W

    My niece was diagnosed last year

    Thanks Tom and Marjolein for your replies! Marjolein, I know my sister in law is on a Dutch CF-forum so I'm sure it's the one you linked to. And even though I know healthcare in the Netherlands is outstanding, I know sometimes they treat this in a different way in different countries so I was...
  13. W

    My niece was diagnosed last year

    with CF. This was within 2 weeks after she was born September 11th. She has been in the hospital in the Netherlands most of 2010  after she was born, then everything was okay for a few months but she had to go back to the hospital for a few days last week, went home for a few days and is yet...
  14. W

    My niece was diagnosed last year

    with CF. This was within 2 weeks after she was born September 11th. She has been in the hospital in the Netherlands most of 2010 after she was born, then everything was okay for a few months but she had to go back to the hospital for a few days last week, went home for a few days and is yet back...
  15. W

    My niece was diagnosed last year

    with CF. This was within 2 weeks after she was born September 11th. She has been in the hospital in the Netherlands most of 2010 after she was born, then everything was okay for a few months but she had to go back to the hospital for a few days last week, went home for a few days and is yet back...
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