Recent content by writewoman

There is much to be said about caring for a child with CF, but the most important is that whatever "sacrifices" and adjustments must be made, it is an honor and a privilege. I remember hearing the song "You Are My Sunshine" but after HollyCatheryn, who posted earlier, was born I understood the...

O.K. I just tried it and got an error message. I'll let Holly know there's a problem and see if she can get it up and running. That's weird because it was working yesterday.

Oops! I tried to set up a hyperlink, but it obviously didn't work. Let's try this again <a target=new class=ftalternatingbarlinklarge href="http://www.geocites.com/murrensnaturemama ">www.geocites.com/murrensnaturemama </a> . Now, hopefully that will work. Sorry!

I just now opened it up to make sure that there were no problems and it came right up for me. Try clicking on this link <a target=new class=ftalternatingbarlinklarge href="http:///www.geocities.com/murrensnaturemama/">Text</a> to see if that works. Sorry for the problems!

My daughter is the one who created the Web site that Julie referred to. She had a great pregnancy, birth and now has an incredible daughter (I'm grandma, I get to say that!). She found that even her CF docs were not up to date on the latest research re: CF and pregancy. I highly recommend her...

I'm delighted and proud to say that my 25-year-old daughter with CF is living out her dreams. Though she was unable to complete college due to frequent hospitalizations, she has still realized her dream of teaching violin. Because of the classes she <i>did</i> take and through her experiences...

I would suggest insisting that the doctor do further testing (Chest x-rays, etc.) and make sure that he writes the Rx for a minimum of three weeks. Anything less than that is unlikely to kill the bugs that most kiddos with CF grow. Don't be afraid of the docs. You are your child's best and...

The swim team is a great idea. We offered both our daughters the opportunity to do all kinds of activities from early on. Holly, my daughter with CF, enjoyed gymnastics as a little kiddo. However, by the time she was school age, we got her involved in swimming on the local team, an activity she...

I'm sorry I've been out of touch, but I will e you, then send you a copy of the booklet. I think it will be especially appropriate since he's now the age that she was when it was published. The hospital decided to use pictures of Holly instead of the illustrations I had envisioned so he can see...

I wrote a little booklet for children with CF that was published by Schneider Children's Hospital (part of Long Island Jewish Hospital) when my daughter was younger. People have responded very positively to it over the years. I have kept quite a few copies that I give out occasionally. If you're...

I think the trampoline, if properly supervised, is a great idea. Most pediatricians will advise against it because they treat so many tramp-related injuries. However, we got one for our daughter when she was only two and it was a fun way for her to strengthen her lungs and to get her coughing...