Recent content by zamanka

! It's so weird that for CFers there the danger everywhere, that they can pick up a bad bacteria at anywhere. So sorry for you and for everyone. And thanks for telling your story and about Canada and the medication... It's good to know. My husband has the Acapella but he doesn't use it and...

My husband is using colistin for quite a long period of time. Yesterday I've just noticed that this stuff is really really sticky! Just like a super glue.. I was really surprised. CFers has so many issues due stickiness and this thing should make them feel better?... I'm not sure if Colistin...

:D thanks! how much this 8 months costed you by the end?

Yes, it's always interesting about other ways to treat CF and healthy food is good anyway. But what I'm thinking is that before antibiotics was created someone should have already tried the other healthy way for treating CF then... Did I understood right that standard treatment is Tobi (if...

Thanks for sharing this :) I told to my husband about the garlic effect you've wrote and he is really excited! He really loves garlic (FART) And we just had a dinner with lots of onions. I'm afraid he better keep distance from me now :o btw, he asked if onions shouldn't be cooked as well?

Thanks for the all information and tips you gave, Michael! Seems like you have a very similar story to my husband (catching Pseudomonas in your 30th). By the way have you got an idea where you caught it? May I also ask you about your lung function? How it was when you were diagnosed and how is...

That's good to be aware which medicine can cause permanent damage, as Amakacin... Sorry for you. Is it really bad?

Really? But how to control nasty pseudomonas then? We're eating quite a lot of garlic and onions, but I'm not sure if it's enough to survive?

I see. Thanks for your advices, Bill.

Sounds exactly as my husband had. He was taking Azythromicin 3 times a week for a long term and he had a hearing loss on his left ear. Doctors won't say it was because Azythromicin (he did tests at ENT and etc), but he stopped taking Azythromicin anyway and after that his hearing was back to...

which medicine do you nebulise?..

Thanks for your reply, Bill Have you got Pseudomonas as well?

I've never heard about this... My husband is using eFlow nebuliser with Colomicin. This one should work better?

I'm a bit confused... So Cfers are not Always on antibiotics, so they do have breaks? As I said before, since my husband was diagnosed he is always, almost non-stop on antibiotics... Doctors told us this is because he has chronic Pseudomonas colonisation and tablets help to keep it from...

Hi Bill, but he is seen by CF Clinic since he was diagnosed... That's what is prescribing for him at the moment: Avamys for 3 month Doxycycline 100mg 2 times a day Salbutamol Inhaler (before nebuliser) Hypertonic saline 7% (nebulised before Colomicin, to make make mucus more liquid) Colomicin...