Cystic Fibrosis Forum (EXP)

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Recent content by ZuzuNY

  1. Z

    Anyone else HATE dealing with insurance?

    Sorry for the multiple posts, but BTW... I could write a novel on how much frustration I've had dealing with insurance companies. A NOVEL! Most recently, we we PENALIZED $4,000 because we received Brand name Tobi, instead of the generic which had just come out the month prior. This penalty...
  2. Z

    Anyone else HATE dealing with insurance?

    Jason, Please send me a PM with your address, and I will send you a few bottles of Zenpep to get you through to the 6th! ~Yvonne yvonnestew@yahoo.com
  3. Z

    Anyone else HATE dealing with insurance?

    If you take Zenpep you can get FREE Boost delivered right to your door! You would simply sign up at https://www.live2thrive.org. You can also get your co-pays reimbursed through them. They do occasionally run out of Boost Plus in Chocolate (which is my son's favorite), but they have several...
  4. Z

    Anyone else HATE dealing with insurance?

    If you take Zenpep you can get FREE Boost delivered right to your door! You would simply sign up at https://www.live2thrive.org. You can also get your co-pays reimbursed through them. They do occasionally run out of Boost Plus in Chocolate (which is my son's favorite), but they have several...
  5. Z

    Want some TOBI?

    CCyr and isabella Mendoza - Just checking to see if you received my private messages. =)
  6. Z

    Want some TOBI?

    Here is a screen shot of my Tobi bill... I don't know if it worked. Also, that "penalty fee" does not count toward our deductible or out of pocket expenses.
  7. Z

    Want some TOBI?

    scrapper1264 , Thank you, I have the co-pay assistance, but it doesn't matter. Express scripts will charge me a $200 co-pay PLUS a $4000 fine every time we refill Tobi. Co-pay assistance actually paid for it last month, and that used up our assistance for the entire year. Now we are forced...
  8. Z

    Want some TOBI?

    Hello! We would love the Tobi! I have been battling with our RX company because they are fining us $4000 plus charging us a $200 co-pay for Tobi! We can't afford to get Tobi even with insurance! I am so glad your son has been pseudomonas free for a year! Yay! I will gladly pay overnight...
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