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I've seen post in the past about taking less enzymes or none at all while on Kalydeco. Can anyone who's on this shed more light. I know the docs are going totell patients to continuetaking enzymes as directed, but would be nice and a huge quality of life factor if this drug limited or even...
I've seen post in the past about taking less enzymes or none at all while on Kalydeco. Can anyone who's on this shed more light. I know the docs are going totell patients to continuetaking enzymes as directed, but would be nice and a huge quality of life factor if this drug limited or even...
One thing we do with Avery (age 8) while she is playing softball is pack her the gatoraide power gels for a quick pick me up. Also, during those hot days of the summer when she is playing multiple games her snack is pickles as well as a shot of pickle juice. Now this is not by any means a high...
One thing we do with Avery (age 8) while she is playing softball is pack her the gatoraide power gels for a quick pick me up. Also, during those hot days of the summer when she is playing multiple games her snack is pickles as well as a shot of pickle juice. Now this is not by any means a high...
One thing we do with Avery (age 8) while she is playing softball is pack her the gatoraide power gels for a quick pick me up. Also, during those hot days of the summer when she is playing multiple games her snack is pickles as well as a shot of pickle juice. Now this is not by any means a high...
Yes, our clinic does yearly bronchs. But we can decline to have one if we want. Our clinic follows the same principle as yours, that they are a form of therapy and a way to keep a close eye on the effects of the disease on the childs lungs.
Yes, our clinic does yearly bronchs. But we can decline to have one if we want. Our clinic follows the same principle as yours, that they are a form of therapy and a way to keep a close eye on the effects of the disease on the childs lungs.
Yes, our clinic does yearly bronchs. But we can decline to have one if we want. Our clinic follows the same principle as yours, that they are a form of therapy and a way to keep a close eye on the effects of the disease on the childs lungs.
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My daughter has cultured MRSA for two almost three years now. Her MRSA is now considered colonized. Our Docs have never treated her for it and always acted like it was no big deal.
Until her last CF Clinic when he told us she needed to start Tobi 28 on 28 off. Keep in mind we have never had...
My daughter has cultured MRSA for two almost three years now. Her MRSA is now considered colonized. Our Docs have never treated her for it and always acted like it was no big deal.
Until her last CF Clinic when he told us she needed to start Tobi 28 on 28 off. Keep in mind we have never had...
My daughter has cultured MRSA for two almost three years now. Her MRSA is now considered colonized. Our Docs have never treated her for it and always acted like it was no big deal.
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<br />Until her last CF Clinic when he told us she needed to start Tobi 28 on 28 off. Keep in mind we...
Avery was 2 years old, my wife was in the food court and she didn't have any and Avery refused ketchup. So my wife challenged her to do it after she showed her how to do it, as they say the rest is history.
Avery was 2 years old, my wife was in the food court and she didn't have any and Avery refused ketchup. So my wife challenged her to do it after she showed her how to do it, as they say the rest is history.
Avery was 2 years old, my wife was in the food court and she didn't have any and Avery refused ketchup. So my wife challenged her to do it after she showed her how to do it, as they say the rest is history.
Our daughter started using it when she was 2.5 years old, she had some irritation at first but that was to be expected. Her bhroncs have been excellent that last three years she has been on it.
Chuck
Our daughter started using it when she was 2.5 years old, she had some irritation at first but that was to be expected. Her bhroncs have been excellent that last three years she has been on it.
Chuck
Our daughter started using it when she was 2.5 years old, she had some irritation at first but that was to be expected. Her bhroncs have been excellent that last three years she has been on it.
Chuck
Our daughter started using it when she was 2.5 years old, she had some irritation at first but that was to be expected. Her bhroncs have been excellent that last three years she has been on it.
Chuck
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