Cystic Fibrosis Forum (EXP)

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  1. T

    End Stage CF?

    We were told last April my daughter was in end stage, so I am not sure it means same to all doctors. Her health detoriated after birth of her son, he will be 5 in July. She has had PFT lately 23-29, winter was hard this year for us seemed like we were in hospital at least 1 mos. She is on O2 10...
  2. T

    End Stage CF?

    We were told last April my daughter was in end stage, so I am not sure it means same to all doctors. Her health detoriated after birth of her son, he will be 5 in July. She has had PFT lately 23-29, winter was hard this year for us seemed like we were in hospital at least 1 mos. She is on O2 10...
  3. T

    End Stage CF?

    We were told last April my daughter was in end stage, so I am not sure it means same to all doctors. Her health detoriated after birth of her son, he will be 5 in July. She has had PFT lately 23-29, winter was hard this year for us seemed like we were in hospital at least 1 mos. She is on O2 10...
  4. T

    End Stage CF?

    We were told last April my daughter was in end stage, so I am not sure it means same to all doctors. Her health detoriated after birth of her son, he will be 5 in July. She has had PFT lately 23-29, winter was hard this year for us seemed like we were in hospital at least 1 mos. She is on O2 10...
  5. T

    End Stage CF?

    We were told last April my daughter was in end stage, so I am not sure it means same to all doctors. Her health detoriated after birth of her son, he will be 5 in July. She has had PFT lately 23-29, winter was hard this year for us seemed like we were in hospital at least 1 mos. She is on O2 10...
  6. T

    waiting

    I think in the beginning its all so scary> When I first got the news my first born had CF I had no clue what it was, no family member had ben diagnosed before. The first thing he learned to do at 8 mos was pretend to stop breathing he would see me panic and start laughing. He also learned to...
  7. T

    waiting

    I think in the beginning its all so scary> When I first got the news my first born had CF I had no clue what it was, no family member had ben diagnosed before. The first thing he learned to do at 8 mos was pretend to stop breathing he would see me panic and start laughing. He also learned to...
  8. T

    waiting

    I think in the beginning its all so scary> When I first got the news my first born had CF I had no clue what it was, no family member had ben diagnosed before. The first thing he learned to do at 8 mos was pretend to stop breathing he would see me panic and start laughing. He also learned to...
  9. T

    waiting

    I think in the beginning its all so scary> When I first got the news my first born had CF I had no clue what it was, no family member had ben diagnosed before. The first thing he learned to do at 8 mos was pretend to stop breathing he would see me panic and start laughing. He also learned to...
  10. T

    waiting

    I think in the beginning its all so scary> When I first got the news my first born had CF I had no clue what it was, no family member had ben diagnosed before. The first thing he learned to do at 8 mos was pretend to stop breathing he would see me panic and start laughing. He also learned to...
  11. T

    pray for our family

    You and Your family are in my prayers. May God watch over you and give you the strength you need
  12. T

    pray for our family

    You and Your family are in my prayers. May God watch over you and give you the strength you need
  13. T

    pray for our family

    You and Your family are in my prayers. May God watch over you and give you the strength you need
  14. T

    pray for our family

    You and Your family are in my prayers. May God watch over you and give you the strength you need
  15. T

    pray for our family

    You and Your family are in my prayers. May God watch over you and give you the strength you need
  16. T

    Megace aka Megestrol Acetate

    My daughter had a bad allergic reaction to Megace. We ended up in the ER she got a shot, next day hives still there breathing awful so she ended up in ths hospital.
  17. T

    Megace aka Megestrol Acetate

    My daughter had a bad allergic reaction to Megace. We ended up in the ER she got a shot, next day hives still there breathing awful so she ended up in ths hospital.
  18. T

    Megace aka Megestrol Acetate

    My daughter had a bad allergic reaction to Megace. We ended up in the ER she got a shot, next day hives still there breathing awful so she ended up in ths hospital.
  19. T

    Megace aka Megestrol Acetate

    My daughter had a bad allergic reaction to Megace. We ended up in the ER she got a shot, next day hives still there breathing awful so she ended up in ths hospital.
  20. T

    Megace aka Megestrol Acetate

    My daughter had a bad allergic reaction to Megace. We ended up in the ER she got a shot, next day hives still there breathing awful so she ended up in ths hospital.
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