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We did our IVF at the Utah Center for Reproductive Medicine. It is tied to the University of Utah hospital. Our latest round of IVF was around $13k (including drugs). The sperm retrieval was an additional $1200. Sperm retrieval was done with a process called a tess-e (or testicular biopsy). An...

Slugo, I hope you don't mind but I turned your private message into a post. This is so other people with similar experiences can chime in.

Thanks for the reviews. One decimal place, what do they think we are? Animals. I definitely get anal about numbers but do appreciate the nuance of taking real life measurements. I've also learned that just because a gauge reads out to 5 decimal points, that doesn't mean that it is accurate to 5...

I'm not a woman but I had a buddy whose wife was on antibiotics and it made her cycle 9 months late. Apparently antibiotics can interact with birth control pills.

I think the test is worthwhile as well. It is scary, but also scary is living life without knowing why you have illness. A late in life diagnosis seem to have a far better outlook than what you will typically read about with CF. I hope that you can get him to do the test, and that you...

Be more stubborn-er (I know you've got it in you). You are the customer, get what you need.

Is there any out of pocket Max on that 20%? That would at least give you a cap, year to year. I believe there are some 'donut hole' insurances that might fill the medicare gap for you. Secondly, your fiance's CF clinic should have a social worker. This person might have a better view of your...

Your son should meet with his respiratory therapist the next clinic visit and discuss alternatives. If the therapist is intransigent about Vest only, then you need to ask them clinic if they have an alternate therapist that is willing to take quality of life and patient's desires into...

I've had two PEPs. They are a little too big to fit in a pocket but small enough for a hand-bag or carry-on. The first I called a PEP valve (seen here: http://www.uwhealthkids.org/cf-center/cystic-fibrosis-cf-treatment-positive-expiratory-pressure-pep/34309). The second (and one I use...

Have you looked into a PEP valve/mask? Or Active Cycle Breathing (ACBT)? My respiratory therapist introduced me to these as alternate therapies usefull for for short duration travel and other occasions where the vest is not practical to drag around. I like to use ABCT when I have minor...

Great post Bookworm! I like how she divides exercies into levels and stays totally positive about doing level 1 or level 2 if that is all you are up for. Also, I love this quote from the report: "Doing exercise, then, can make the difference between you being unable to do things, and being...

Have any of you used the spiro PD at home? What are your thoughts on it? Could you get insurance to pay for it? http://spiropd.com/

I use a desk and a nightstand combo with some holes drilled in the back for cord access. The nice thing about the desk is being at the computer when you are doing treatments. Being at the computer gives me a lot of options while breathing. I can read, internet surf, budget, study, work, watch...

I don't want to hijack this post too much. Slugo could you start a new post with your specific questions, concerns, and history and I will try my best to answer them?

For some CF related exercise stuff, google Jerry Cahill. I stumbled on his stuff when I was researching my running plan. He is one of my heros.

Where are you at physically? How active are you? What is your general exercise tolerance? How much time do you have to dedicate to exercise? What kind of exercise do you enjoy? I always do best getting my exercise doing something that doesn't feel like exercise (basketball, racquetball...

My wife has bucket list items for me (Europe, Hawaii, 50 years of marriage) but I try to keep my list fairly short term. Not because I don't think I will make it long term, but because I try to stay busy enough that my immediate time demands don't leave much time for dreaming. Repining for the...

Thanks for sharing your experience. PFT from 100 to 40s is scary, let us know how much they came back. I've yet to be hospitalized and it scares me too. I too think I will be able to go in on my own terms, but then again my own terms are to never go in.

There is an interesting theory that low oxygen might affect mental health. The article below speaks to oxygen poor air, but I think oxygen poor blood would have similar effects. http://mic.com/articles/104096/there-s-a-suicide-epidemic-in-utah-and-one-neuroscientist-thinks-he-knows-why...

@windex125; I'm on Creon with 24000 lipase (the old Creon20s). I take 7 with meals (plus a bonus 1-3 if I'm eating a very large or very delicious meal like Ribs or Steak), 2-6 with snacks. More fat and more protein = more pills. If I could go back 20-25 years, I would have spoken out more about...