Cystic Fibrosis Forum (EXP)

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  1. N

    Port tommrow

    so i got my port a week ago last friday.. and changed the dressing last night and i thought i would post a pic so yall could see.. looks like i got shot with a rubber bullet. this is before i cleaned it with the Alcohol so the tape resadue and stuff is still there kinda grose looking but... aint...
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    Port tommrow

    getting my port tommrow at noon.. Im scared out of my mind.. i know its not a "big deal" but its the biggest i ever had..any calming words?
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    Epic Fail

    So i just got back from my PICC attempts...4 to be exact. non successful seem i have scaring in my veins around my shoulder so.. PICC's are no long an Option.. so now the plan is to be admitted monday. doing IV's with a normal heploc. untill they can get me in for a you guessed it Port Cath.. im...
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    PICC line this week...

    I Dont know For Sure When Or How Long all i know is my PFT dropped 10% of my lung capacity. and im bout to get a PICC but atleast i get to do it at home...) still have my dogs and and my bed. and i dont have to spend SUMMER in the hostpital <img src=""> so i look at these things positively. and...
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    needs advice with a transplant....

    Well a couple months ago my Dr brought this up told me to at least think about it. I'm sitting right about 43% or so. Last night I had a break down and drove around pondering this subject. I know many people are all for the transplant but I'm not sure if I want it. I know I will be letting many...
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