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They can run blood tests to look for markers in your blood. Conformation is made through a biopsy of your small intestine. But if you just have a gluten allergy, these tests will come back negative. The best thing to try then is to eliminate all gluten for at least 6 weeks and see if your...

My son also has cf and celiac. He also has autism. It is hard. We just got a feeding tube because he also can't have milk, dairy, soy or rice on top of wheat and gluten. All meat is fine, as long as you don't add gluten to it. All fruits and veggies are good too. There are gluten free...

My son has cf and also juvenile rheumatoid arthritis. Two separate diagnoisis. If you are seeing swelling in multiple jointsthat has lasted for at least 6 weeks, you should see a rheumatologist. Good luck

I think you are putting alot of pressure on your self. Everyone is different and matures and grows differently. I think you are a little self conscious about your how big you are and that you look young for your age. My son has te same issue. He is almost 17 weighs 72 pounds and looks like...

So sorry to hear. We live about 40 min. from Pittsburgh and go to the cf clinic at childrens. My son sees dr. O. Have you talked to your cf doctor, if it is dr O or one of the others ther I am sure they would be happy to share their opinion with ph yo and your mom. Best of luck and I hope...

I am so sorry you are not getting to really enjoy your vacation. Would you be able to excuse yourself for one afternoon to rest, relax, and have some down time while the others go off and do something. Then around dinner time meet back up to have a nice evening? Hope things get better, hang n...

Congratulations! Wishing you both a long, healthy, happy marriage with many blessings and an amazing future.

Ok, I'm not sure if any of this will make sense, but here goes. Off and on my son has blue fingernails. His hands and feet are always cold. But when his nails are not blue, his nails remain completely white. I am not even able to do the capillary refill test on him(where you push down on one...

I will keep you and your daughter in my prayers. Hang in there.

My son is enrolled in Pennsylvania Leadership Charter School. They are able to offer special education classes for my son.

I have home schooled with using a cyber school since my son was in 4th grade. He will be entering 11 yh grade in the fall. He also has autism so it is just a better fit for him. It is not for everyone. I cannot stress that enough. My son has no desire to interact with other children so the...

Is there a chewable version of enzymes?

Has he had any therapy since receiving a diagnoisis? Maybe a chance to sit down with someone who doesn't have a dog in this fight is what he needs. He may need to say things he has not felt comfortable saying up o this point with his family. He may also need to have someone new to form a bond...

I would see a specialist and ask about putting it off since it is not bothering her. I would also find out if she definetly has to be put under or if using the giggle gas is a possibility. I know how you feel, my son also had a g-tube placed recently and it was a nightmare. He bled internally...

My son received a late diagnoisis of cf because of testing being down wrong. He is now 16 ans suffered with all of the symptoms of cf his entire life. At a young age he would complain about his feet and ankles hurting with some slight swelling. It was always pushed off and thought it was just...

If you are concerned,I would definetly talk with the Dr. regarding your questions and concerns. Maybe if ped doc is closer you could go to their office to administer it for the first time. I would most certainly put a call on to the CF doctor first thing Mondy morning. Good luck

Have you considered coming to the US to have her evaluated at a cf accredited center. It might not be a bad idea to have her evaluated to see if there are any better treatment options for her. It sounds like she has had a rough road so far and it may be in her best interest. I will pray for...

Praying for her and her family!

Another good thing is to buy a couple new activities or toys to give her while she is there. Ask grandparents, aunts, uncles to purchase things to keep her busy like coloring books, books, DVDs , ect. Ask them to wrap them so she feels extra special. Bubbles are another thing my son loved...

We went to Disney and it was considered medical equipment and did not count toward our baggage. We did get a letter from our doctor to be sure. I also called the airline and they made a note so their would be no problem the day of the flight. I believe they keep it with the strollers...