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Today is my birthday. I am 34 years old and I don't feel a day over 100.. HA I am really enjoying being with friends and also with family.. Today I got taken out for breakfast and lunch... Tomorrow my friends are taking me out to dinner.. It is going to be a lot of fun because it is all the...

So today, my dear, dear friend who is way more amazing to me then I could ever be to her.(and i mean that honestly... I have a lot of friends but very few who put me before them on a regular basis.. she is one of those friends) anyway shee had her husband go and donate blood for me, on my...

Just wondering how things are going?

I was just wondering what you guys did to make your end of life wishes known. WHo you told what you wanted etc? I know their are health care proxy's and living wills to basically tell the doctor what you want as far as health goes.. But who did you tell specifically what you want and don't want...

Hey Emily, I just want you to know that I miss you around here.. stop hiding out and come back and talk to me.... No hiding out.. you are loved to much... Me

Sorry to those it doesn't apply... I just wrote a long, response and question thing for you in your blog but it never posted... My question is when are you going to be in chat??? I would love to pick your brain...if you don't mind... I had some questions ... Just let me know the time.. I am on...

Just wondering if you got your sweat tests results back.... I have seen you respond to posts but I have been waiting to hear..... You had to of heard by now.. I guess no news is good news...??? Thinking negative test results for you... Jennifer

I was just wondering if anyone has had any experience with HalfLightly... My GI dr gave me the prescription for it today...for my colonoscopy next Tuesday.. It comes with 5 tablets and a 2 liter container of stuff that I fill with water.. I get to chose the flavor, cherry, orange, or lemon...

Hi, I am at my wits end with my medical bills.. Co pays and Co insurance.. and at this point I think it would be cheaper to take out a second insurance plan then it would to pay these co pays.. My bills are completly overwhelmed with the amount of money I owe... so anyway.. any ideas would be...

As the world knows I am out on disabilty.. I was not able to take a leave on the FMLA because I didn't work enough hours for that so I am out on a personal leave.. I get three months.. My leave is up Nov 12.. then my job autumatically terminates.. They said I could reapply for a different...

I was just wondering if anyone else has has plueral effusions? I am not real sure what that even means but my catscan showed plueral effusions bilaterally. Just wondering,

I just hate this disease.. In case any one is wondering.... I just found out that another friend of mine has died. He was an "older"Cfer his name was Dave. I don't want to say his last name on here but he was from NJ. Went to clinic in PA. He was married, and had to very, beautiful kids that...

I am not going to start another blog to blog my feelings about the blogs blogs blogs or what ever but I did respond to EMilys and Katys and if anyone is interested I think the whole thing is nuts...

MARK JUST CALLED TO TELL ME THAT JUILE HAS GIVEN BIRTH TO ALL THREE BABIES... ALL OF THEM ARE DOING WONDERFUL.... YIPPPPPPPIE CASSANDRA WEIGHS IN AT 4 LBS 9 0Z BABY BOY A 4LBS 2 OUNCE BABY BOY B 4 3 OUNCES tHEY ARE ALL HEALTHY AND DOING WONDERFUL... NOW IS NOW TO LATE IF ANYONE WANTS TO GET...

HI, Where else do I turn for advice and input... I have a big decision to make and need some advice.... As you know I have been in the hospital for over three weeks now and I have diviticulitis with a microperforation as well as huge fibroids in my uterus that are blocking me from being able to...

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Apparently my intestines were jealous of all the attention my lungs get and decided they want in on the CF action........ I was told that I have something called DIOS.. I think it means Distal Intestine obstuction syndrome? I was told that I have this today and that I have some scaring and...

I need help.. My doctors came in tonight the ones that are dealing with my CF doctor and they are telling me that I have Fibrosis in my colon.. and intestines and that it is a part of cystic fibrosis... and that is part of my problem in why I am not healing.. so they are ordering more Golytley...

HI Guys, I just thought I would take a few minutes to give you an update on me... I got the results of my catscan today....I didn't make any progress what so ever since the last catscan.... Progess has been made since I got here, but none in the past week.. I am now on day 20 of being here and...